ISRCTN11677384Completed未知
Primary care led post-diagnostic dementia care: Feasibility and implementation study of evidence-based, person-centred sustainable models for future care
niversity College London0 sites60 target enrollmentStarted: December 8, 2021Last updated:
Conditions
Trial Snapshot
- Phase
- 未知
- Status
- Completed
- Sponsor
- Enrollment
- 60
Study Overview
Brief Summary
2023 Protocol article in https://pubmed.ncbi.nlm.nih.gov/37597869/ (added 21/08/2023) 2024 Results article in https://pubmed.ncbi.nlm.nih.gov/38977367/ (added 09/07/2024) 2024 Results article in https://pubmed.ncbi.nlm.nih.gov/39002959/ feasibility and acceptability findings (added 16/07/2024)
Study Design
- Study Type
- Interventional
Eligibility Criteria
- Sex
- All
Inclusion Criteria
- •People living with dementia (PLWD):
- •1. Age 18+ years
- •2. Diagnosis of dementia recorded in patient medical record
- •3. Registered with a participating practice
- •4. Community-dwelling
- •5. Capacity to consent to the study. Where a patient does not have capacity to content, a consultee opinion will be sought
- •1. Age 18+ years
- •2. Identified as a carer of a PLWD. A ‘carer’ is someone who gives care and support to their partner, child, friend, or another close relative. 'Care and support' can mean practical help or emotional support
- •3. Willing and able to provide informed consent (and acting as a consultee for the PLWD, if applicable)
- •Professionals:
- •1. Age 18+ years
- •2. Identified as working for or with PLWD
- •3. Willing and able to provide informed consent
Exclusion Criteria
- •People living with dementia (PLWD):
- •1. Individuals under the age of 18 years
- •2. Potential participants who are judged as inappropriate for the study by a member of the primary care team (e.g., due to concurrent life events such as bereavement or receiving end of life care)
- •3. Participants who have an advance statement recorded in their primary care records indicating that they do not wish to take part in research studies
- •4. People living in a care home
- •1. Individuals under the age of 18 years
- •2. Potential participants who are judged as inappropriate for the study by a member of the primary care team (e.g., due to concurrent life events such as bereavement)
- •3. Participants who are not fluent English speakers will be excluded since they would be unable to complete the standardised outcome measures and are likely to have difficulties in participating in a qualitative interview
- •Professionals:
- •1. Health care professionals who do not provide post-diagnostic dementia support
Investigators
Similar Trials
Completed
Not Applicable
Dementia care initiative in primary practice (German title: Initiative Demenzversorgung in der Allgemeinmedizin)DementiaISRCTN68329593Federal Association of the Statutory Regional Health Insurance Fund (Allgemeine Ortskrankenkasse [AOK]) (Germany)900
Completed
Not Applicable
Dementia: Diagnosis and management in primary care - a primary care based education/research projectNervous System DiseasesAlzheimer's diseaseISRCTN55477154Alzheimer's Society (UK)
Recruiting
Not Applicable
Improving PCP Advance Care Planning for People With ADRDAlzheimer DiseaseAlzheimer's Disease (Incl Subtypes)AgingDementiaNCT06565169University of Pittsburgh120
Completed
Not Applicable
General practitioner-based dementia care with coordinated cooperation and risk-stratified use of specialised nursesF00F01F02F03Dementia in Alzheimer diseaseDementia in other diseases classified elsewhereUnspecified dementiaVascular dementiaDRKS00023560niversitätsklinikum Freiburg247
Completed
Not Applicable
Case conference for people with dementia and challenging behavior (FallDem)DementiaISRCTN20203855Stiftung Wohlfahrtspflege Nordrhein-Westfalen [Public Welfare Foundation North Rhine-Westphalia]413