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Endometriosis Group Care

Not Applicable
Active, not recruiting
Conditions
Endometriosis
Pelvic Pain
Interventions
Other: Peer Empowered Endometriosis Pain Support (PEEPS)
Registration Number
NCT05622955
Lead Sponsor
Washington University School of Medicine
Brief Summary

The goal of this clinical trial is to test the effectiveness of the Peer Empowered Endometriosis Pain Support (PEEPS) program in people living with endometriosis-related pelvic pain. The main question\[s\] it aims to answer are:

* Is PEEPS effective at decreasing pain interference and improving patient-reported quality of life outcomes?

* What are the barriers and facilitators to PEEPS implementation? Participants will engage in eight weekly 2-hour sessions led by an endometriosis specialist, pain psychologist, pelvic floor physical therapist, and yoga instructor. At these sessions they will participate in peer support, education, mindfulness, and yoga.

Detailed Description

This is an 8 week interdisciplinary, integrative group care program conducted through the Department of Obstetrics and Gynecology (OB/GYN) at Washington University in St. Louis (WUSTL). The program, called PEEPS, incorporates mindfulness, physical therapy, yoga, physical activity, nutrition, and education. Additionally, PEEPS will provide peer support and demonstrate investment of individual clinicians and the healthcare system.

The program focuses on equipping participants with pain management and coping skills so they have an expanded toolkit to manage their pain after completing the program.

Recruitment & Eligibility

Status
ACTIVE_NOT_RECRUITING
Sex
Female
Target Recruitment
33
Inclusion Criteria
  • Age 18-48 years
  • Operative confirmation of endometriosis
  • Chronic pelvic pain (defined as pain perceived to originate from the pelvis, lasting ≥6 months)
  • No plan to have surgery in next 12 weeks
  • Be able to attend eight 2-hour weekly sessions on the Washington University campus
Exclusion Criteria
  • Non-English speaking
  • Currently pregnant
  • Severe physical impairment
  • History of hip or spine surgery
  • Opioid use ≥ 5 days in the past 3 months, other than for the 6-week post-operative period
  • Current or history of psychiatric disorder with psychosis
  • Vulvadynia or vaginismus

Study & Design

Study Type
INTERVENTIONAL
Study Design
SINGLE_GROUP
Arm && Interventions
GroupInterventionDescription
Endometriosis group carePeer Empowered Endometriosis Pain Support (PEEPS)Groups of 6-10 patients with endometriosis and chronic pelvic pain will attend eight weekly two-hour sessions.
Primary Outcome Measures
NameTimeMethod
Pain Interference8 weeks

Change in reported pain after PEEPS program completion by Patient-Reported Outcomes Measurement Information System (PROMIS) Pain Interference

Secondary Outcome Measures
NameTimeMethod
Physical Function8 weeks

Change in reported physical function, measured by the PROMIS Physical Function Scale

Endometriosis-specific quality of life8 weeks

Endometriosis-specific quality of life, measured by Endometriosis Health Profile-30

Depression8 weeks

Change in reported depression, measured by the PROMIS Depression Scale

Sexual Function8 weeks

Change in reported sexual function, measured by the Female Sexual Function Index

Anxiety8 weeks

Change in reported anxiety, measured by the PROMIS Anxiety Scale

Overall symptom improvement8 weeks

Change in overall symptoms, measured by the Patient Global Impression of Change Scale

Modified every day discrimination scaleBaseline

To assess experiences of healthcare discrimination

Pain Catastrophizing8 weeks

Change in reported catastrophizing, measured by the Pain Catastrophizing Scale

Trial Locations

Locations (1)

Washington University in St. Louis

🇺🇸

Saint Louis, Missouri, United States

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