The Effectiveness of Physical Therapy at Home in Patients with Duchenne Muscular Dystrophy

Not Applicable

Recruiting

• Conditions: Duchenne Muscular Dystrophy.; Muscular dystrophy; G71.0

• Registration Number: IRCT20131012014988N7
• Lead Sponsor: Tabriz University of Medical Sciences

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Last Update Posted: 26 August 2019

Recruitment & Eligibility

• Status: Recruiting
• Sex: All
• Target Recruitment: 50

Inclusion Criteria

Patients with Duchenne muscular dystrophy who their clinical illness was confirmed by Biopsy and genetic test .
alert parents between 18-50 years old
informed consent
live in north western in Iran

Exclusion Criteria

Patients that they dont live in North western of Iran or they Migrate
No informed consent for participation or continuation of the study,
they dont want to take part or don't have enough education.

Study & Design

• Study Type: interventional
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Musculoskeletal pain (based on scores ranging from 0 to 10), the frequency of muscle cramps per week, muscle weakness in the four limbs with upper limb based on the international brooke score ( 1 to 6) and lower limbs based on the NSAA score ( 1 to 34 with 17 items). Timepoint: These parameters will be evaluated 2 times, 1- before the treatment and 2- six months after the treatment. Method of measurement: The upper limb muscle weakness score with the Brooke system and the lower muscle weakness score will be scored based on the NSAA system. The North Star Ambulatory Assessment (NSAA) has 17 items that can be used to assess motor ability in pediatric patients with duodenal muscular dystrophy. The highest score in this system is scoring 34, which means the ability to move completely independently. Brooke's Benchmarking Questionnaire uses 10 questions to evaluate muscular ability in the upper limb of patients with Duchenne's muscular dystrophy.