Patients With Alzheimer's Disease or Related Youth Disease

University Hospital, Lille1 site in 1 country220 target enrollmentJanuary 5, 2018

ConditionsAlzheimer Disease, Early Onset Lewy Body Disease Frontotemporal Lobar Degeneration

Overview

Phase: Not Applicable
Intervention: Not specified
Conditions: Alzheimer Disease, Early Onset
Sponsor: University Hospital, Lille
Enrollment: 220
Locations: 1
Primary Endpoint: the delay between the diagnosis and the first symptomsIdentification of factors related with diagnosis delay
Status: Completed
Last Updated: 5 years ago

Overview Investigators Eligibility Criteria Outcomes Sites Similar Trials

Overview

Brief Summary

This study aims to determine factors related to diagnosis delay for patients with young onset dementia (first symptoms before 60 years old) who live in North of France.

Registry

clinicaltrials.gov

Start Date

January 5, 2018

End Date

April 25, 2019

Last Updated

5 years ago

Study Type

Observational

Sex

All

Investigators

Sponsor

University Hospital, Lille

Responsible Party

Sponsor

Eligibility Criteria

Inclusion Criteria

•As part of this study, patients will be considered:
•Residing in the departments of Nord (59) and Pas-de-Calais (62),
•whose diagnosis of Alzheimer's disease or related illness (DLFT, DCL) was made and announced,
•Whose diagnosis of illness was made after 2007
•whose first symptoms appeared before the age of 60 Patients included in the COMAJ cohort and those who completed the Pathways medical and social booklet will have to meet these criteria to be selected for this study.
•As part of the survey, caregivers of patients meeting the above criteria and the following two will be recruited:
•Having consulted or being followed by liberal neurologists or in hospital memory consultations (excluding CMRR-CNR-MAJ Lille) of the departments of Nord and Pas-de-Calais,
•Not monitored at the CMRR-CNR-MAJ Lille (ad hoc notice possible). The caregiver is defined as a family member or friend who helps regularly by doing the necessary tasks so that the sick person can keep as much autonomy as possible.

Exclusion Criteria

•aged under 18
•no social coverage
•refusal to sign informed consent form

Outcomes

Primary Outcomes

the delay between the diagnosis and the first symptomsIdentification of factors related with diagnosis delay

Time Frame: 10 years

To determine the factors associated with diagnostic delay in young patients (early symptoms before age 60) with Alzheimer's disease or related degenerative disease (Fronto-temporal Lobar Degeneration , Lewy Body Dementia )

Secondary Outcomes

Comparison of patient profiles followed at the CMRR-CNR-MAJ Lille and those who are not.(10 years)
the percentage of patients who have had a lack of information about the disease and possible aids(10 years)
the percentage of refusal or delay of treatment of certain medico-social aids by the competent authorities(10 years)
Comparison of patients characteristics followed at the CMRR-CNR-MAJ Lille and those who are not.Impact of the diagnosis on YOD(10 years)