DRKS00015859
Completed
N/A
Children affected by rare diseases, their siblings and their families (CARE-FAM-NET) - CARE-FAM-NET
niversitätsklinikum Hamburg-Eppendorf Klinik für Kinder- und Jugendpsychiatrie, -psychotherapie und -psychosomatik0 sites687 target enrollmentDecember 18, 2018
Conditionsrare diseases
Overview
- Phase
- N/A
- Intervention
- Not specified
- Conditions
- rare diseases
- Sponsor
- niversitätsklinikum Hamburg-Eppendorf Klinik für Kinder- und Jugendpsychiatrie, -psychotherapie und -psychosomatik
- Enrollment
- 687
- Status
- Completed
- Last Updated
- last year
Overview
Brief Summary
No summary available.
Investigators
Eligibility Criteria
Inclusion Criteria
- •1\. Families with at least one child between the age of 0 and 21 years with a rare disease or with a suspected rare disease.
- •2\. Consent to participate in the study.
- •3\. Sufficient knowledge of the German language of parents and children.
- •4\. Insured at the participating insurance companies.
Exclusion Criteria
- •Severe psychiatric disorders and impairments with acute symptoms such as suicidal tendencies, severe depression, addictions, acute psychotic symptoms etc., which will not be sufficiently supplied by this new low\-frequency intervention. Children and parents with acute treatment demand in the control group will be placed at psychotherapists. Nevertheless, they stay in the control group
Outcomes
Primary Outcomes
Not specified
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