Survey of Current Management of Orthopaedic Complications in Charcot Marie Tooth Disease Patients
Overview
- Phase
- Not Applicable
- Intervention
- Not specified
- Conditions
- Charcot-Marie-Tooth Disease
- Sponsor
- University College London Hospitals
- Enrollment
- 16
- Locations
- 1
- Primary Endpoint
- Procedural correlations among orthopaedic surgeons on management of foot deformities in CMT patients
- Status
- Completed
- Last Updated
- 11 years ago
Overview
Brief Summary
Charcot-Marie-Tooth (CMT) disease is the most common inherited peripheral neuropathy. Foot deformities are frequent complications in CMT patients and orthopaedic surgery is often required. As yet there are no systematic studies on the management of orthopaedic complications in CMT patients and the current approach varies between centres. This study is a survey with the aim of understanding the current surgical approach to orthopaedic complications in CMT.
The target population includes orthopaedic surgeons who perform surgical procedures for foot deformities in CMT patients attending centres participating in the Inherited Neuropathies Consortium (INC).
Detailed Description
The study protocol consists of a survey addressed to orthopaedic surgeons. The survey will be completed once and it includes two different scenarios of typical CMT patients (one adult and one child). The orthopaedic surgeons will be asked which surgical procedures they would apply to each scenario: * forefoot cavus, * clawtoes and * hindfoot varus No medications or therapeutic agents are a component of this project.
Investigators
Prof Mary Reilly
Professor of Clinical Neurology and Consultant Neurologist
University College London Hospitals
Eligibility Criteria
Inclusion Criteria
- •Orthopaedic surgeons who perform surgical procedures for foot deformities in CMT patients attending centres participating in the Inherited Neuropatheis Consortium (INC)
- •Willing to complete survey
Exclusion Criteria
- •Does not read or speak English
- •Inability to provide informed consent
Outcomes
Primary Outcomes
Procedural correlations among orthopaedic surgeons on management of foot deformities in CMT patients
Time Frame: 1 day