A novel integrated person-centred palliative care intervention in primary care for patients with chronic lung disease and their families: a cluster stepped wedge feasibility hybrid type 2 RCT

ational Institute for Health Research0 个研究点目标入组 105 人开始时间: 2020年3月27日最近更新: 2021年5月3日

试验速览

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•1. Adults (aged at least 18 years) attending primary care with diagnosed COPD or chronic lung disease (CLD) on the basis of the likely aetiological determinants in South Africa, namely cigarette or other smoking history, biomass fuel smoke exposure, history of previous pulmonary tuberculosis or other respiratory infections and occupational dust exposure
•2. Eligible for palliative care on the basis of disease severity, with at least one of the following:
•2.1.Breathless at rest or on minimal exertion
•2.2. On home oxygen
•2.3. Three or more hospital admissions in the last year
•2.4. More than three emergency centre (EC) visits in the last month
•2.5. Karnofsky Performance Status of 50 or less
•2.6. Dependence on others for activities of daily living (ADLs)
•3. Able to communicate in English, Afrikaans or Xhosa
•4. Able to give informed consent
•Family members/caregivers:
•1. Primary caregiver to be identified by the patient, in line with the definition of caregiver: Unpaid, informal providers of one or more physical, social, practical and emotional tasks. In terms of their relationship to the patient, they may be a friend, partner, ex-partner, sibling, parent, child or other blood or non-blood relative.
•2. Adult aged at least 18 years
•3. Able to communicate in English, Afrikaans or Xhosa
•4. Able to give informed consent

发起方

ational Institute for Health Research