Resilience in People Following Spinal Cord Injury
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 28
- 试验地点
- 1
- 主要终点
- Themes Survey
研究概览
简要总结
This study aims to quantify resilience in survivors of a spinal cord injury. The study will consist of structured interviews and self-reported surveys. We will look for common themes between participants at different stages of injury (1-5 years, 5-15 years, >15 Years).
详细描述
The goal of this project is to broaden the understanding of the lived experience of aging with a disability, from the perspectives of individuals with physical disabilities resulting from spinal cord injury (SCI). The specific objectives of this project are to:
- Learn how people with SCI attain and maintain optimal quality of life as they age.
- Understand how people with SCI develop resilience as they grow older.
- Understand how individual quality of life is related to the degree and mechanism of resilience among people with SCI.
- Learn which resources and practices have been most helpful and useful to people with SCI as they age with their disability.
- Assess personal, behavioral, and environmental factors that contribute to resilience and quality of life among people aging with SCI.
- Refine and confirm a holistic model for the relationships among the concepts of resilience, quality of life, and person-centered factors (resources, behaviors).
Through in-depth interviews and detailed surveys, we will explore how people with SCI attain and maintain optimal quality of life as they age, and how their quality of life relates to resiliency as they traverse the path of aging with SCI. We will explore with participants the resources and practices that have been most helpful and useful to them as they age with their disability.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Retrospective
入排标准
- 年龄范围
- 18 Years 至 80 Years（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •18-80 years old
- •History of Traumatic Spinal Cord Injury at least 1 year prior
- •Ability to self-report on factors affecting health and well being
排除标准
- •Progressive Spinal Cord Injury
结局指标
主要结局
Themes Survey
时间窗: 1 day (Single time point)
Common themes from the structured interviews
次要结局
- Resilience(1 day (Single time point))
研究者
Elliot Roth
Co-Medical Director, Brain Innovation Center
Shirley Ryan AbilityLab