Improving health care for patients with terminal, progressive illnesses: Status and demand analysis for palliative day-care clinics and day hospices and recommendations for health care planning
- Conditions
- patients (= 18 years) with oncological and non-oncological diseases such as organ insufficiencies, degenerative neurological diseases and sufficient physical and mental capacity to participate
- Registration Number
- DRKS00021446
- Lead Sponsor
- Medizinische Hochschule Hannover, Institut für Allgemeinmedizin und Palliativmedizin
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Complete
- Sex
- All
- Target Recruitment
- 453
Patients (at least 18 years of age) who are currently hospitalised or have been hospitalised in the last 12 months with a potentially palliative progression of their illness and their relatives will be included. Patients with oncological and non-oncological diseases such as organ insufficiencies, degenerative neurological diseases are included if they have sufficient physical and mental capacity to participate. The participating patients should not (yet) be in a specific palliative or hospice care situation in order to be able the prospective evaluation of different scenarios. After having received detailed information about the type, content and purpose of the study and their participation, patients and/or their relatives sign a written agreement on their participation. Individuals of all genders (f/m/d) and ethnic backgrounds may participate in the study.
Exclusion criteria are (1) patients in a palliative or hospice care situation and their relatives, (2) insufficient German language proficiency to complete the questionnaire (Discrete Choice Experiment) and/or (3) no consent to participate in the study.
Study & Design
- Study Type
- observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method overview of patients' and family caregivers' preferences regarding ambulatory palliative care services<br>The overview is gained by means of a questionnaire (decision sets in Discrete Choice Experiment). Answers will be evaluated using economic methods (regression models).
- Secondary Outcome Measures
Name Time Method