Practices of Accompaniment of the Relatives of Patients in the AGonic Phase by an Interdisciplinary Team

Completed

• Conditions: Practice Nurse's Scope
• Interventions: Other: questionnaire

• Registration Number: NCT04818684
• Lead Sponsor: University Hospital, Bordeaux

Brief Summary

The PROPAGE study program aims above all to improve the experience and satisfaction of family and friends regarding the support they receive during the dying person's agony phase.

Detailed Description

The objective of PROPAGE 2 is to establish a consensus on the practices for accompanying relatives during the agonic phase in the context of hospitalization in the palliative care unit by an interdisciplinary team.

Study Timeline

• Study First Submitted: 2021-03-25
• Study First Submitted QC: 2021-03-25
• Study First Posted: 2021-03-26
• Study Start: 2021-12-01
• Primary Completion: 2022-05-15
• Study Completion: 2022-05-15
• Status Verified: 2024-01
• Last Update Submitted: 2024-01-15
• Last Update Posted: 2024-01-17

Recruitment & Eligibility

• Status: COMPLETED
• Sex: All
• Target Recruitment: 278

Inclusion Criteria

Not provided

Exclusion Criteria

Not provided

Study & Design

• Study Type: OBSERVATIONAL
• Study Design: Not specified

Arm && Interventions

Group	Intervention	Description
Volunteers	questionnaire	at least 3 years of seniority in palliative care unit will be required, including 1 year in the participating palliative care unit. The representative participating in the study will preferably be the volunteer coordinator.
Nurses	questionnaire	at least 3 years of seniority in palliative care unit will be required, including 1 year in the participating palliative care unit.
Social and Educational Assistants	questionnaire	at least 3 years of seniority in palliative care unit will be required, including 1 year in the participating palliative care unit.
Physician	questionnaire	at least 3 years of seniority in palliative care unit will be required, including 1 year in the participating palliative care unit.
Caregivers	questionnaire	at least 3 years of seniority in palliative care unit will be required, including 1 year in the participating palliative care unit.
Psychologists	questionnaire	at least 3 years of seniority in palliative care unit will be required, including 1 year in the participating palliative care unit.
Relatives	questionnaire	Relative of a patient who died in the palliative care unit at least 6 months ago Person to trust or to prevent if not designated Relative understanding and speaking sufficient French Relative not a health professional Relative who visited the palliative care unit during the last 3 days of the patient's life and who met the care team: * Traceability of the arrival of the loved one in the last 2/3 days of the patient's hospitalization * Traceability of a meeting of the loved one with a member of the team over the last 3 days of his hospitalization or verification during telephone contact with the loved one after drawing lots Relative with an email address (to be verified during telephone contact with the loved one after drawing lots)

Primary Outcome Measures

Name	Time	Method
Score of Likert-type scales (rated between 0 and 9), best match what each participant think about support practices for relatives of persons in the agony phase : from 1 (strongly disagree) to 9 (strongly agree).	Month 4	It is based on a questionnaire made up of a list of support practices developed from the literature review and the list of practices identified through focus groups in the preliminary study PROPAGE 1. The responses are collected. on Likert-type scales reflecting the degree of agreement towards a proposition (rated between 0 and 9) and / or in the form of free comments.

Trial Locations

Locations (1)

Chu de Nimes; 🇫🇷 Nîmes, France