Widening Aims and Giving Patients a Voice for Expanded Structures in Breast Cancer Care Jointly Developed by Patients and Physicians (Wechselseitiger Patienten-Arzt-Austausch in Der Versorgung Bei Brustkrebs Mit Dem Ziel Der Gemeinsamen Erarbeitung Neuer Patienten-orientierter Strukturen)
Overview
- Phase
- Not Applicable
- Intervention
- Questionnaire physicians
- Conditions
- Breast Cancer
- Sponsor
- University Hospital Augsburg
- Enrollment
- 2000
- Locations
- 2
- Primary Endpoint
- Current state of care - patient view
- Status
- Recruiting
- Last Updated
- 3 days ago
Overview
Brief Summary
The aim of this BZKF project is to record the current care structure for breast cancer patients in order to use this as a basis for developing possible future models for improvement. The active involvement of representatives of regional and national patient organizations in the creation of a patient-based and patient-oriented survey ensures that the needs of patients are the focus. In addition to and in contrast to other projects, relevant questions are explicitly addressed not only to patients but also to physicians in order to identify and specify the interfaces between patient wishes/suggestions and to develop clinical consequences for care.
The first objective is to survey the "current situation" by recording the current care structure for breast cancer. The focus is on the survey of both groups on patient-physician communication, time management and coping strategies.
By planning the future harmonization of national data structures, the basis is created for the long-term goal of an improved "target", a concept developed jointly by physicians and patients for an improved communication and care structure that focuses on the patient.
Investigators
Nina Ditsch
Head of Breast Centre University Hospital Augsburg, Principal Investigator, Clinical Professor
University Hospital Augsburg
Eligibility Criteria
Inclusion Criteria
- •(patients):
- •Breast cancer or DCIS
- •women and men aged 18 years and older
Exclusion Criteria
- •(patients):
- •women and men \< 18 years
- •no histologically confirmed breast cancer or DCIS diagnosis
- •Inclusion Criteria (physicians):
- •\- Treatment of breast cancer patients
Arms & Interventions
Physicians
Physicians treating patients with breast cancer
Intervention: Questionnaire physicians
BC Patients
Patients with diagnosis of breast cancer or DCIS
Intervention: Questionnaire patients
Outcomes
Primary Outcomes
Current state of care - patient view
Time Frame: through study completion, an average of 3 years
The primary aim of the questionnaire is to record the current reality of care for breast cancer patients with a focus on communication.
Secondary Outcomes
- Current state of care - physician view(through study completion, an average of 3 years)