The Experience of Participating in a Pediatric Summer Intensive Therapy Program--A Mixed Methods Study
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 13
- 试验地点
- 1
- 主要终点
- Semi-structured interviews
研究概览
简要总结
The purpose of this study is to explore the lived experiences of children with neurodevelopmental diagnoses and their caregivers with an intensive model of therapy. Children will receive usual care during the summer intensive program and the investigators will access medical records to assess effectiveness. Children and caregivers will also be asked to participate in semi-structured interviews upon the completion of the episode of care.
详细描述
The purpose of this study is to explore the lived experiences of children with neurodevelopmental diagnoses and their caregivers with an intensive model of therapy. Research questions include: 1.) What are the perceptions of children and caregivers about intensive therapy after participating in multiple intensive therapy episodes over time? 2.) Why do caregivers choose to continue with an intensive model of therapy periodically for their child with neurodevelopmental diagnoses? 3.) What were the outcomes for children with neurodevelopmental disabilities participating in an episode of intensive therapy? Children will receive usual care during the summer intensive program and the investigators will access medical records to assess effectiveness. Children and caregivers will also be asked to participate in semi-structured interviews upon the completion of the episode of care.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 年龄范围
- 4 Years 至 15 Years（Child）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Children receiving therapy through the Children's Therapy Center's Tiger Intensive Program and their caregivers from May 24 to August 13 2021.
排除标准
- 未提供
结局指标
主要结局
Semi-structured interviews
时间窗: at discharge assessed up to 10 days
Upon completion of the program, children and caregivers will participate in an interview about their experience
Canadian Occupational Performance Measure
时间窗: measured at discharge 4 weeks after enrollment
Individualized client-centered performance measure
次要结局
- Change in Thomas Test(Measured at day 1 and discharge 4 weeks later)
- Change in Lower extremity passive range of motion(Measured at day 1 and discharge 4 weeks later)
- Change in Kids Bestest(Measured at day 1 and discharge 4 weeks later)
- Change in Timed Up and Down Stairs(Measured at day 1 and discharge 4 weeks later)
- Change in Peds QL(Measured at day 1 and discharge 4 weeks later)
- Change in Early Clinical Assessment of Balance(Measured at day 1 and discharge 4 weeks later)
- Change in Segmental Assessment of Trunk Control (SATCO)(Measured at day 1 and discharge 4 weeks later)
- Change in Timed on and off the floor(Measured at day 1 and discharge 4 weeks later)
- Change in popliteal angle(Measured at day 1 and discharge 4 weeks later)
- Change in m-CTSIB(Measured at day 1 and discharge 4 weeks later)
- Change in 6 minute walk test(Measured at day 1 and discharge 4 weeks later)
- Change in GOAL(Measured at day 1 and discharge 4 weeks later)
- Pediatric Balance Scale(Measured at day 1 and discharge 4 weeks later)
- Change in Gastrocnemius muscle length(Measured at day 1 and discharge 4 weeks later)
- Change in Pediatric Evaluation of Disability Inventory(Measured at day 1 and discharge 4 weeks later)
- Change in Edinburgh Visual Gait Scale(Measured at day 1 and discharge 4 weeks later)
研究者
Jamie Hall
Assistant Teaching Professor
University of Missouri-Columbia