Dementia Care Challenges Among a Sample of Informal Caregivers in Egypt

Not yet recruiting

• Conditions: Dementia

• Registration Number: NCT05572086
• Lead Sponsor: Assiut University

Brief Summary

Dementia is a widespread incapacitating mental syndrome that carries a significant challenge for healthcare systems, persons with dementia, and their caregivers. The world health organization estimates that there is "more than 55 million persons live with dementia worldwide, and there are nearly 10 million new cases every year"

In Egypt there are many studies had investigated caregiver burden with chronic ill elderly as physical or psychiatric diseases; however, studies focusing on caregiving Patients With Dementia (PWD), especially the psychological aspect, has been raised just few years ago. Some focused on psychiatric comorbidities of care givers, others correlated caregivers' quality of life with dementia staging. Other research groups designed educational programs and psychosocial interventions for training informal caregivers with significant psychological burden reduction at the end of the studies , also another group focused their study on the negative emotions expressed by caregiver towards PWD. Still there are many aspects of caregiving not explored considering the financial burden, lack of formal educational resources, stigma, cultural and religious values related to caregiving.

Detailed Description

our study aims:

1. To assess challenges of dementia-related knowledge among a sample of dementia informal caregivers

2. To assess the needs of persons with dementia and their informal caregivers

3. To assess the burden of caregiving among a sample of dementia informal caregivers

4. To assess possible culturally related challenges of caregiving among a sample of dementia informal caregivers

The study will be carried out through face-to-face interview, telephone interview, and online survey from community sources, including support groups in social media, memory clinics, outpatient clinics (Geriatric medicine, neurology, or psychiatry), and social support groups of non-governmental organizations.

Study Timeline

• Study First Submitted: 2022-09-30
• Status Verified: 2022-10
• Study First Submitted QC: 2022-10-05
• Last Update Submitted: 2022-10-05
• Study First Posted: 2022-10-07
• Last Update Posted: 2022-10-07
• Study Start: 2023-02-01
• Primary Completion: 2024-02-01
• Study Completion: 2024-06-01

Recruitment & Eligibility

• Status: NOT_YET_RECRUITING
• Sex: All
• Target Recruitment: 314

Inclusion Criteria

• Informal Caregivers aged 18 years or older
• Informal Caregiver in daily contact for care with the person with dementia for at least one year.

Exclusion Criteria

• Informal caregivers who are unable or unwilling to communicate.
• Formal caregivers

Study & Design

• Study Type: OBSERVATIONAL
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Assessment of caregiver burden	one year	By using Zarit Burden Interview