Informal caregivers are key figures in ALS and PMA care, take care of them! - ALS and PMA caregivers

niversitair Medisch Centrum Utrecht0 个研究点目标入组 280 人开始时间: 待定最近更新: 2024年4月23日

适应症

试验速览

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•The research population consists of informal caregivers and the ALS and PMA patients they provide care for. In order to be eligible to participate in this study, caregiver-patient dyads must meet all of the following criteria:
•* The caregiver is the partner of the ALS or PMA patient
•* The informal caregiver is 18 years or older
•* The informal caregiver and the patient have access to the Internet
•* The patient gives the caregiver permission to answer questions which are related to the patient and the disease of the patient.
•* The caregiver and the patient are able to complete Dutch questionnaires;When patients indicate they do not want to participate in the study, caregivers are allowed to participate without the patient. The inclusion criteria remain in force.

发起方

niversitair Medisch Centrum Utrecht