Access to Pediatric Rheumatology Centers for JIA Patients: Factors Associated With Time to Access Pediatric Rheumatology Centers
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 发起方
- 入组人数
- 45
- 试验地点
- 4
- 主要终点
- Experience and views of barriers and solutions to the referral to pediatric rheumatology center for JIA patients
研究概览
简要总结
JIA patients, their parents, and the health care professionals experience the complexity of the initial care pathway. The aim of the study is to explore the referral pathway to access pediatric rheumatology centers for JIA patients. The exploration will aim to identify the barriers and facilitators of referral, based on the conceptual framework of the health literacy. The investigators will conduct a qualitative study using semi-structured interviews. The perspectives of parents/children/health care professionals will be crossed to enrich the data.
研究设计
- 研究类型
- Observational
- 观察模型
- Other
- 时间视角
- Other
入排标准
- 年龄范围
- 11 Years 至 —（Child, Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •age > 11 years
- •JIA diagnosed between 4 and 24 months prior to the start of the study
- •parent of a child with JIA diagnosed between 4 and 24 months prior to the start of the study
- •Health care professional:
- •Physician with experience in the initial management of children with JIA (between symptom onset and first visit with a pediatric rheumatologist).
排除标准
- •For all participants:
- •Refusal to participate in interviews
- •Presenting a health condition incompatible with an interview
- •Participants with inadequate French to take part in semi-structured interviews
结局指标
主要结局
Experience and views of barriers and solutions to the referral to pediatric rheumatology center for JIA patients
时间窗: About 1 hour
Through semi-structured interviews, the study will reconstruct the referral pathway to the pediatric rheumatology center for JIA patients. * For patients and their parents, the interviews will focus on their experiences of the health care system, their feelings about interactions with health professional, their expectations and the elements that led to the parents' decision regarding their child's health. * For health care professionals, the interviews will focus on their experience in managing children with JIA (from the symptom onset to the first visit with the pediatric rheumatologist), the difficulties they encountered, and the improvements to be made in training and communication.
次要结局
未报告次要终点