Test of an Innovative, Scalable Support Program for Parents With a Young Child Recently Diagnosed With Autism Spectrum Disorder
Overview
- Phase
- N/A
- Intervention
- Autism Parent Navigators
- Conditions
- Autism Spectrum Disorder
- Sponsor
- Penn State University
- Enrollment
- 360
- Locations
- 1
- Primary Endpoint
- CES-Depression
- Status
- Active, Not Recruiting
- Last Updated
- 4 days ago
Overview
Brief Summary
To address the dual needs of parents for support in navigating Autistic Spectrum Disorder (ASD) services and maintaining positive family functioning, the investigators propose to test Autism Parent Navigators (APN), an innovative in-home, peer support model for parents with a young child recently diagnosed with ASD.
Investigators
Mark Feinberg
Research Professor
Feinberg, Mark, Ph.D.
Eligibility Criteria
Inclusion Criteria
- •Parents of children who have been newly diagnosed with Autism Spectrum Disorder (ASD).
- •The child will be age 2-6 years and been diagnosed with ASD in the past four months.
- •The child is the first child in the family to be diagnosed with ASD.
- •Parents are not already involved in a parent mentoring relationship.
- •Parents are currently involved in a couple relationship, including same-sex partners, dating couples, adoptive parents and step-parent families.
Exclusion Criteria
- Not provided
Arms & Interventions
Autism Parent Navigators Intervention
Autism Parent Navigators Intervention is a manualized, in-home, peer support model for parents with a young child recently diagnosed with ASD.
Intervention: Autism Parent Navigators
Peer mentoring
Peer mentors will offer an equivalent number of in-home or telephone visits for families, providing non-manualized peer support.
Intervention: Peer mentoring
Outcomes
Primary Outcomes
CES-Depression
Time Frame: 12 month
Parent depression
Weekly Count of Service Navigation Behaviors
Time Frame: 12 month
Engagement with ASD-related Services
Parenting Scale (Arnold)
Time Frame: 12 month
Parenting consistency, warmth
Secondary Outcomes
- PDD-BI(12 month)
- Coparenting Relationship Scale (Feinberg, Brown, & Kan, 2012)(12 month)
- Family Empowerment Scale - FES(12 month)