The Angela project

Not Applicable

Completed

• Conditions: Dementia; Mental and Behavioural Disorders

• Registration Number: ISRCTN15324329
• Lead Sponsor: niversity College London

Brief Summary

2019 Other publications in https://pubmed.ncbi.nlm.nih.gov/31875707/ Patient and Public Involvement experiences (added 03/02/2022) 2019 Other publications in https://pubmed.ncbi.nlm.nih.gov/31647324/ a scoping review of lived experiences (added 03/02/2022) 2020 Other publications in https://pubmed.ncbi.nlm.nih.gov/32584457/ consensus on quality indicators for comprehensive assessment of dementia in young adults using a modified e-Delphi approach (added 03/02/2022) 2020 Other publications in https://pubmed.ncbi.nlm.nih.gov/33124442/ evidence-based statements to inform best practice for the care of people receiving a diagnosis of young onset dementia using a modified Delphi approach (added 03/02/2022) 2020 Other publications in https://pubmed.ncbi.nlm.nih.gov/32067481/ exploring the nature of post-diagnostic support services that were perceived positively by younger people with dementia and carers (added 03/02/2022) 2019 Other publications in https://pubmed.ncbi.nlm.nih.gov/31530311/ scoping review of key pointers to diagnostic accuracy (added 03/02/2022) 2021 Results article in https://pubmed.ncbi.nlm.nih.gov/33951252/ Project findings and recommendations (added 03/02/2022) 2021 Results article in https://pubmed.ncbi.nlm.nih.gov/34473006/ results of investigation into compliance with quality indicators in electronic health records (added 03/02/2022) 2020 Results article in https://pubmed.ncbi.nlm.nih.gov/32979287/ results of national UK survey of service use and satisfaction (added 03/02/2022)

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2017-08-08
• Study Completion: 2019-12-01
• Last Update Posted: 21 February 2022

Recruitment & Eligibility

• Status: Completed
• Sex: All
• Target Recruitment: 233

Inclusion Criteria

1. People of any gender diagnosed with dementia before their 65th birthday
2. Diagnosed with dementia of recognised subtype as defined by the Diagnostic and Statistical Manual of Mental Disorders, fifth edition (2013) and internationally accepted criteria for subtype diagnoses
3. People of any gender and age who are primary carers of younger people living with dementia or other family members / supporters who are affected by the diagnosis of young onset dementia

Exclusion Criteria

1. Dementia caused by HIV
2. Traumatic brain injury
3. Down’s syndrome
4. Huntington’s chorea
5. Alcohol-related dementia

Study & Design

• Study Type: Observational
• Study Design: Not specified