Improving Participation of Autistic Children and Adolescents in the Habilitation Process
试验速览
- 阶段
- 不适用
- 状态
- Enrolling By Invitation
- 发起方
- 入组人数
- 120
- 试验地点
- 1
- 主要终点
- The child's involvement
研究概览
简要总结
This project aims to explore the impact of a survey-based and a meeting-based needs assessment models on 7 to 17 year old autistic children's participation in the needs assessment process at the initial reception when enrolled at a Child and Youth Habilitation Centre.
详细描述
The increasing number of children diagnosed with autism spectrum disorder (ASD) presents significant challenges for healthcare providers. Research emphasizes the importance of involving children in their healthcare decisions. However, due to the complex nature of ASD, characterized by differences in communication and social interaction, healthcare professionals struggle to adapt their services for these children.
To address this issue, the present study compares two assessment methods for children with ASD: one based on surveys and another based on meetings with healthcare professionals. In addition, supplementary information from the children's parents or guardians and healthcare providers will be gathered .
Data collection methods will include questionnaires, interviews, and analysis of individual habilitation plans. The goal is to recruit 120 children aged 7-17 diagnosed with ASD but without intellectual disabilities, with half undergoing the survey-based assessment and the other half undergoing the meeting-based assessment.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 年龄范围
- 7 Years 至 17 Years（Child）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •autism spectrum disorder
排除标准
- •intellectual disability
结局指标
主要结局
The child's involvement
时间窗: After each of four needs assessment meetings that take place over a 2-month period, with the first meeting scheduled to take place one month after inclusion.
Consist of seven to nine questions relating to the child's involvement and engagement during a needs assessment meeting. The form is available in three versions. One for each child/youth, parent/guardian and staff. Each version comes in two variants. A variant for a regular meeting and a variant for the closing meeting. The questions are rated on 4-point Likert scales from "Not at all" to "Very much".
次要结局
- The Mental Health Continuum - Short Form(At inclusion in the study and after completed needs assessment approximately 3 months after inclusion)
- Cantril ladder(At inclusion in the study and after completed needs assessment approximately 3 months after inclusion)
- The "Your child's strengths, abilities and special needs"-questionnaire.(At inclusion in the study and after completed needs assessment approximately 3 months after inclusion)
- The collaboration with the neuropsychiatric team questionnaire(After completed needs assessment approximately 3 months after inclusion)