DRKS00030724尚未招募不适用
Pilot and evaluate the feasibility of an online intervention for LFS sufferers - OnLiFe
niversitätsklinikum Würzburg0 个研究点目标入组 20 人开始时间: 2023年6月9日最近更新:
适应症
试验速览
- 阶段
- 不适用
- 状态
- 尚未招募
- 发起方
- 入组人数
- 20
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Observational
入排标准
- 年龄范围
- 18 Years 至 one（—）
- 性别
- All
入选标准
- •Diagnosis Li-Fraumeni syndrome, (probably) pathogenic TP53 germline variant.
- •- Minimum age: 18 years
- •- German as native language or very good knowledge of German
- •- Informed written consent to participate in the study is required.
- •- Safe handling and unrestricted access to laptop, PC, smartphone or tablet
排除标准
- •- Unclassified variant in the TP53 gene (VUS)
- •- Under current treatment for cancer (e.g. immunotherapy, chemotherapy, radiation)
- •- Lack of signed informed consent
- •- Lack of capacity to give consent
- •- Insufficient knowledge of German
- •- Insufficient technical equipment or ability
- •- Limited legal capacity or similar impairments
- •- Physical or mental impairment that makes it impossible to answer questionnaires or independently conduct an online intervention
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