Pilot and evaluate the feasibility of an online intervention for LFS sufferers
- Conditions
- o ICD diagnoses available
- Registration Number
- DRKS00030724
- Lead Sponsor
- niversitätsklinikum Würzburg
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Pending
- Sex
- All
- Target Recruitment
- 20
Diagnosis Li-Fraumeni syndrome, (probably) pathogenic TP53 germline variant.
- Minimum age: 18 years
- German as native language or very good knowledge of German
- Informed written consent to participate in the study is required.
- Safe handling and unrestricted access to laptop, PC, smartphone or tablet
- Unclassified variant in the TP53 gene (VUS)
- Under current treatment for cancer (e.g. immunotherapy, chemotherapy, radiation)
- Lack of signed informed consent
- Lack of capacity to give consent
- Insufficient knowledge of German
- Insufficient technical equipment or ability
- Limited legal capacity or similar impairments
- Physical or mental impairment that makes it impossible to answer questionnaires or independently conduct an online intervention
Study & Design
- Study Type
- observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method
- Secondary Outcome Measures
Name Time Method