NCT00217321Unknown不适用
Parkinson's Disease Registry
Muhammad Ali Parkinson Research Center1 个研究点 分布在 1 个国家目标入组 20,000 人开始时间: 2003年11月最近更新:
适应症
试验速览
- 阶段
- 不适用
- 发起方
- 入组人数
- 20,000
- 试验地点
- 1
研究概览
简要总结
The purpose of the Parkinson's disease Registry is to develop a national and international database of persons with Parkinson's disease (PD). The Registry will be used to facilitate the development of new therapies and healthcare services to improve the quality of life for people with PD. It will also be a means for investigators in the field of PD to quickly identify and notify subjects about other research studies for which they are eligible.
Objectives include:
- Assess current treatment approaches and develop best-practice guidelines
- Track the functional abilities, access to healthcare and cost of illness of people with PD over time
- Drive the development of innovative research projects
- Accelerate the process of informing patients of research projects for which they may be eligible
详细描述
What do you need to know?
- Any individual diagnosed with PD is eligible to enroll.
- Participation in the registry is voluntary, confidential and free of charge.
- Eligible participants will be notified about opportunities to participate in clinical trials, though they are under no obligation to enter.
- Participants will need to complete an updated questionnaire every six months.
- Participants may also be asked to complete additional surveys for PD research projects.
- Any data provided will be used in scientific publications in summary form only.
- Participant names will not be released to anyone outside the Parkinson's disease Registry management team without written authorization, nor will names be sold for advertising or fund-raising purposes.
研究设计
- 研究类型
- Observational
- 观察模型
- Ecologic Or Community
- 时间视角
- Prospective
入排标准
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Clinical diagnosis of Parkinson's disease
排除标准
- •No clinical diagnosis of Parkinson's disease
研究者
研究点 (1)
Loading locations...
相似试验
Unknown
不适用
Parkinson's Disease RegistryParkinson DiseaseNCT02051205Buddhist Tzu Chi General Hospital200
招募中
不适用
Chinese PD RegistryParkinson DiseaseNCT03887663Xiangya Hospital of Central South University3,000
招募中
不适用
Chinese FPD RegistryParkinson DiseaseNCT03508986Xiangya Hospital of Central South University1,500
招募中
不适用
Parkinson's Foundation PD GENEration Genetic RegistryParkinson's DiseaseNCT04994015Parkinson's Foundation35,382
招募中
不适用
Chinese EOPD RegistryParkinson DiseaseNCT03508960Xiangya Hospital of Central South University3,000