Dr Jasmin Barman-Aksӧzen, diagnosed with erythropoietic protoporphyria (EPP), joined a University of Zurich research group working on Scenesse, a treatment increasing skin pigmentation to protect against light-induced skin damage. Scenesse, approved in Europe in 2014 and the US in 2019, allows EPP patients to spend more time in sunlight without pain. Barman-Aksӧzen co-founded the International Porphyria Patient Network (IPPN) and advocates for head-to-head studies comparing new treatments to existing therapies.