Living with Cancer: The Importance of Gratitude in Clinical Trials and Beyond
Key Insights
Stage 4 ovarian cancer (search) survivor emphasizes the importance of gratitude for mental health during treatment, citing almost nine years post-diagnosis.
Access to phase 1 clinical trials and dedicated healthcare professionals, including oncologists and clinical trial staff, are key blessings for cancer (search) patients.
Support from ALS (search) specialists and church family aids in coping with paraneoplastic syndrome (search), a rare motor neuron disease caused by cancer (search) treatment.
Kelly Irvin, diagnosed with stage 4 ovarian cancer (search) in January 2016, highlights the critical role of gratitude in navigating the complexities of cancer (search) treatment and its side effects. Irvin's journey underscores the importance of a positive mindset, access to innovative treatments, and a strong support system in improving the quality of life for cancer patients.
The Blessing of Time and Targeted Treatments
Irvin emphasizes that her ability to celebrate the holidays almost nine years post-diagnosis is a significant blessing. This extended survival is attributed to the dedication of healthcare professionals who provide targeted treatments for various forms of cancer (search). She expresses particular gratitude for her oncologists, including a Russian transplant to Texas who managed her care for five years, and Dr. Anthony Tolcher, founder of NextOncology (search), who provides access to phase 1 clinical trials. Dr. Tolcher's optimism and the proximity of his clinic (30 minutes from her home) are invaluable to her ongoing treatment.
Clinical Trials and Dedicated Care Teams
Irvin's current clinical trial treatment has been effective for almost two years. She acknowledges the anxiety of potential treatment failure but chooses to focus on the present benefits. The clinic nurses, research coordinator Steven Alvarado, and scheduler Crystal Huerta are also recognized for their exceptional care and support. Alvarado's patience and Huerta's proactive customer service significantly ease the burdens of navigating complex medical processes.
Coping with Paraneoplastic Syndrome and Finding Blessings
Irvin's cancer (search) journey is further complicated by paraneoplastic syndrome (search), a rare motor neuron disease caused by her immune system's response to the cancer. This condition has resulted in mobility loss, preventing her from enjoying activities with her grandchildren. Despite these challenges, Irvin expresses gratitude for Dr. Carlayne Jackson, a respected ALS (search) researcher, and the ALS clinic staff who provide comprehensive care and support in managing her symptoms.
The Skill of Gratitude and the Power of Support
Irvin underscores that the ability to give thanks amidst trials is an acquired skill that requires practice. She credits her church family and Sunday school class for helping her find silver linings in her suffering. This support system provides the strength to persevere and focus on the positive aspects of her life.
Finding Joy in the Present
Despite the uncertainties of her prognosis, Irvin remains thankful for the nine years she has been given to spend with her family, celebrate milestones, and pursue her passion for writing. These experiences bring her great joy and reinforce the importance of gratitude in living with cancer (search).