Erica Hayes, a long COVID patient, highlights the lack of FDA-approved treatments despite $1.15 billion in NIH funding. The NIH's RECOVER initiative, criticized for insufficient clinical trials, is now allocating $515 million more with a focus on trials. Patient advocates urge for trials on prescription-only interventions, not over-the-counter supplements or therapies. The NIH's RECOVER has funded over 200 observational studies and 40 pathobiology studies, but clinical trial results have been limited. The initiative aims to advance treatments for long COVID through rapid, collaborative, and transparent research.