Retinoblastoma Survivor Study: Assessment of General Health and Quality of Life
试验速览
- 阶段
- 不适用
- 状态
- 进行中（未招募）
- 入组人数
- 473
- 试验地点
- 1
- 主要终点
- To describe the long-term health status of long term survivors of childhood retinoblastoma, General medical outcomes, vision status, Rates of second cancer
研究概览
简要总结
The purpose of this study is to find out about the quality of life and health in a group of adults who had retinoblastoma when they were children. By quality of life, we mean how you are feeling about being satisfied with things in your life, including your physical health, your emotional health, and your ability to carry out daily activities. We hope that this information will help us provide better care to future children with retinoblastoma and better follow-up care for survivors of retinoblastoma.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Retrospective
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Patient diagnosed with retinoblastoma at any age
- •At least five years from completion of all retinoblastoma-directed therapy
- •Able to provide informed consent and/or assent, if indicated
排除标准
- 未提供
研究组 & 干预措施
1
Long term survivors of retinoblastoma
干预措施: Questionnaires (Behavioral)
结局指标
主要结局
To describe the long-term health status of long term survivors of childhood retinoblastoma, General medical outcomes, vision status, Rates of second cancer
时间窗: conclusion of study
次要结局
- To describe the quality of life and psychosocial functioning of long term survivors of childhood retinoblastoma Fear of disease recurrence/development of other cancers, Health behaviors, Body image, etc.(conclusion of study)