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临床试验/NCT05037448
NCT05037448已完成不适用

Me & My Wishes: An Efficacy Trial of Long Term Care Residents With Alzheimer's Using Videos to Communicate Care Preferences With Caregivers

University of Utah6 个研究点 分布在 1 个国家目标入组 17 人开始时间: 2020年8月17日最近更新:
适应症

试验速览

阶段
不适用
状态
已完成
入组人数
17
试验地点
6
主要终点
Feasibility of telehealth-delivered Me & My Wishes

研究概览

简要总结

Due to Coronavirus-19, we are exploring the plausibility of delivering the Me & My Wishes intervention via telehealth.

详细描述

Me & My Wishes are videos of nursing home residents talking about their preferences for care, including four sections: About Me, Preferences for Today, Preferences for Medical Intervention and End of Life, and Afterthoughts. Knowing what residents want is essential to staff's ability to provide quality care and can inform family caregivers decision making especially in later stages of life as the resident's cognition declines-a time when family caregivers often feel unprepared. Persons with mild to moderate dementia can accurately express their everyday and end of life preferences, however, stereotypes persist about the decision making abilities of people with dementia that often prevent their involvement in conversations about care. The investigators propose to explore the feasibility of delivering Me & My Wishes via a telehealth platform.

研究设计

研究类型
Interventional
分配方式
Na
干预模型
Single Group
主要目的
Supportive Care
盲法
None

入排标准

年龄范围
65 Years 至 —(Older Adult)
性别
All
接受健康志愿者

入选标准

  • Identified as having Alzheimer's or related dementia
  • Mild to moderate cognitive impairment (BIMS = 8-15, (MDS C0500) (nursing home residents only)
  • Makes Self Understood = <1 (MDS B0700)/present in medical record
  • Understood By Others = <1 (MDS B0800)/present in medical record
  • Reside at the facility at least 2 weeks identified as a long-term resident
  • Age >65 years
  • Speaks English
  • Family Inclusion Criteria:
  • Speaks English
  • Willing and able to watch the videos
  • Willing to complete short surveys. Being unable to attend care conference to view the video (e.g. due to distance) will not exclude family from participating.
  • Staff Inclusion Criteria:
  • Speaks English
  • Willing to watch the videos
  • Willing to complete short surveys

排除标准

  • Limited communication capacity (e.g. aphasia)
  • Cognitively intact
  • Severe cognitive impairment

结局指标

主要结局

Feasibility of telehealth-delivered Me & My Wishes

时间窗: 90 days

ease of use, connecting to internet, communicating with participants. 1-5 scale 1 = strongly disagree, 5 = strongly agree; we also asked what worked well and what could go better

次要结局

未报告次要终点

研究者

申办方类型
Other
责任方
Principal Investigator
主要研究者

Gail Towsley

Associate Professor

University of Utah

研究点 (6)

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