Me & My Wishes: An Efficacy Trial of Long Term Care Residents With Alzheimer's Using Videos to Communicate Care Preferences With Caregivers
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 17
- 试验地点
- 6
- 主要终点
- Feasibility of telehealth-delivered Me & My Wishes
研究概览
简要总结
Due to Coronavirus-19, we are exploring the plausibility of delivering the Me & My Wishes intervention via telehealth.
详细描述
Me & My Wishes are videos of nursing home residents talking about their preferences for care, including four sections: About Me, Preferences for Today, Preferences for Medical Intervention and End of Life, and Afterthoughts. Knowing what residents want is essential to staff's ability to provide quality care and can inform family caregivers decision making especially in later stages of life as the resident's cognition declines-a time when family caregivers often feel unprepared. Persons with mild to moderate dementia can accurately express their everyday and end of life preferences, however, stereotypes persist about the decision making abilities of people with dementia that often prevent their involvement in conversations about care. The investigators propose to explore the feasibility of delivering Me & My Wishes via a telehealth platform.
研究设计
- 研究类型
- Interventional
- 分配方式
- Na
- 干预模型
- Single Group
- 主要目的
- Supportive Care
- 盲法
- None
入排标准
- 年龄范围
- 65 Years 至 —(Older Adult)
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Identified as having Alzheimer's or related dementia
- •Mild to moderate cognitive impairment (BIMS = 8-15, (MDS C0500) (nursing home residents only)
- •Makes Self Understood = <1 (MDS B0700)/present in medical record
- •Understood By Others = <1 (MDS B0800)/present in medical record
- •Reside at the facility at least 2 weeks identified as a long-term resident
- •Age >65 years
- •Speaks English
- •Family Inclusion Criteria:
- •Speaks English
- •Willing and able to watch the videos
- •Willing to complete short surveys. Being unable to attend care conference to view the video (e.g. due to distance) will not exclude family from participating.
- •Staff Inclusion Criteria:
- •Speaks English
- •Willing to watch the videos
- •Willing to complete short surveys
排除标准
- •Limited communication capacity (e.g. aphasia)
- •Cognitively intact
- •Severe cognitive impairment
结局指标
主要结局
Feasibility of telehealth-delivered Me & My Wishes
时间窗: 90 days
ease of use, connecting to internet, communicating with participants. 1-5 scale 1 = strongly disagree, 5 = strongly agree; we also asked what worked well and what could go better
次要结局
未报告次要终点
研究者
Gail Towsley
Associate Professor
University of Utah
