The Effects of Smartphone-assisted Nursing Care Used for Mothers of Children With Cerebral Palsy Who Receive Home Healthcare Services on the Care Burden, Coping With Stress, and Quality of Life of Mothers
试验速览
- 阶段
- 不适用
- 状态
- 尚未招募
- 发起方
- 入组人数
- 48
- 主要终点
- the effect of nurse-assisted telephone application on quality of life, stress and care burden in mothers with cerebral palsy children
研究概览
简要总结
There are studies in the literature aimed at supporting parents who care for children who have Cerebral Palsy. Among these, the study conducted on the use of mobile applications in supporting parents has attracted attention in recent years. When the studies on supporting parents were examined, it was found in one study that a mobile application designed for caregivers enabled parents to support their children's nutrition, bathing, toileting, playing, carrying, and movement training. As a result of this study, it was reported that the knowledge and skills of caregivers regarding the care of their children increased. It was emphasized in another study that mobile medicine applications that are developed for children who have disabilities such as Cerebral Palsy must have a drug list, drug name, drug reminder module, drug registration section, and additional characteristics. In a randomized controlled study, it was reported that a web-based daycare program designed for the children of mothers who had children with CP increased the quality of life of the mothers. In another study, it was explained to caregivers of children who had Cerebral Palsy that the application facilitated the daily care of children anytime and anywhere in a training module consisting of a mobile application with information about CP, nutrition, toilet, bath, transportation, games, and medication reminder modules. Studies conducted on the use of technology-based (telehealth, mobile applications, web-based education) healthcare service delivery, education, and consultancy services in supporting families in Turkey are limited. The present study aimed to reduce the care burden and stress of parents of children who had Cerebral Palsy and improve their quality of life with the mobile application developed with the support of nurses.
The purpose of the present study is to examine the effects of smartphone-supported nursing consultancy applied to mothers of children who have Cerebral Palsy receiving home healthcare services on their care burden, coping with stress, and quality of life
详细描述
Study Question In the present study, an answer will be sought to the question "Does the smartphone-supported nursing consultancy used by the mothers of children with Cerebral Palsy who receive home healthcare and are registered at S.B.U. Dr. Behçet Uz Pediatric Diseases and Surgery Training and Research Hospital Home Healthcare Services Unit located in Konak district of Izmir affect the mothers' care burden, coping with stress and quality of life?"
Hypotheses Hypothesis 1 (H1): There is a difference between the care burden scale scores of the Intervention and Control Group according to time (pre-test, 1st month after the intervention, 3rd month, 6th month).
Hypothesis 2 (H1): There is a difference between the quality of life scale scores of the Intervention and Control Group according to time (pre-test, 1st month after the intervention, 3rd month, 6th month).
Hypothesis 3 (H1): There is a difference between the stress scale scores of the Intervention and Control Group according to time (pre-test, 1st month after the intervention, 3rd month, 6th month).
Original value of the study Coordination between parents and healthcare professionals in pediatric home health services will be improved with the mobile application that will be developed as a result of the study and effective use of healthcare services will be ensured, contributing to the protection, development, and maintenance of healthcare.
研究设计
- 研究类型
- Interventional
- 分配方式
- Non Randomized
- 干预模型
- Parallel
- 主要目的
- Supportive Care
- 盲法
- Double (Participant, Outcomes Assessor)
入排标准
- 年龄范围
- 18 Years 至 49 Years（Adult）
- 性别
- Female
- 接受健康志愿者
- 是
入选标准
- •Having a child with CP registered in the Home Healthcare Services Unit at S.B.U Dr. Behçet Uz Pediatric Diseases and Surgery Training and Research Hospital
- •Residing in the province of Izmir and at home
- •Having a primary diagnosis of Cerebral Palsy in the home health care file
- •The primary caregiver of the child is the mother
- •The mother does not have any communication or mental problems
- •The mother's ability to read and write in Turkish
- •Having an Android or IOS-based smartphone
- •Voluntary participation in the study
排除标准
- •Children who were residing in the Ministry of Family and Social Policies Services.
研究组 & 干预措施
Intervention group
In the study, mobile application will be installed on the phones of the mothers in the initiative group and individual information will be provided about how the patients will use the smartphone application. . Information will be provided to patients for subsequent follow-ups. After the application is started to be used, notifications of the applications developed in Smart Mobile for the disease management process will be made to the mothers of the Initiative Group every two weeks for six months. In addition, the Initiative Group will continue to receive standard care practices such as examinations, examinations, tests, treatment, medical care and rehabilitation offered by the Home Health Services unit.
干预措施: nursing consultancy with smartphone support (Other)
control group
No attempts will be made to the control group. The control group will continue to receive the standard care practices offered by the Home Health Services unit.
结局指标
主要结局
the effect of nurse-assisted telephone application on quality of life, stress and care burden in mothers with cerebral palsy children
时间窗: 1 month
the change in the total scores of the smartphone mobile application applied nurse-assisted to the mothers in the intervention group on the stress, care burden and quality of life scale in the mothers in the intervention group in the study conducted at the end of 4 weeks
次要结局
- the effect of nurse-assisted telephone application on quality of life, stress and care burden in mothers with cerebral palsy children(3 month)
研究者
ÖKKEŞ KISA
The Effects of Smartphone-assisted Nursing Care Used for Mothers of Children With Cerebral Palsy Who Receive Home Healthcare Services on the Care Burden, Coping With Stress, and Quality of Life of Mothers
Dr. Behcet Uz Children's Hospital