Modeling of Patient-patient Expert-caregiver Interactions During the Addiction Care Pathway
试验速览
- 阶段
- 不适用
- 入组人数
- 170
- 试验地点
- 1
- 主要终点
- Description of patients' care pathways through their interactions with EPs and the overall addiction care system, over a one-year period
研究概览
简要总结
"In France and abroad, patient involvement is increasingly encouraged through the development of experiences involving patients in their care or that of their peers.
The Association of PEs in Addictology (APEA) and the Addictology Department of the Bichat Hospital (APHP- Nord, University of Paris) have established a partnership in which PEs volunteer to work with patients throughout the course of their care. To date, no study has evaluated the impact of the PE program in addictology. A preliminary study within the department and the APEA is needed to evaluate the benefits to patients and caregivers, the feasibility and the cost in terms of staff time of implementing the PE program.
The main objective of the project is to describe the care pathways of patients through their interactions with the PEs and the overall addiction care system, over a period of one year, within the Psychiatry-Addictology Department of the Bichat Hospital and then in the outpatient setting.
The secondary objectives are to characterize and describe the patients' profiles according to these pathways; as well as to describe the contribution of EPs in the process of coordinating the care of these patients (interaction between patients - EPs - health professionals).
This is a non-interventional monocentric cohort study in the Psychiatry-Addictology Department of the Bichat Hospital.
In practice, data concerning interactions between patients and EPs and caregivers and EPs will be collected by EPs directly on an eCRF after each contact, for 12 months from inclusion. Patients will be followed during their care pathway for a total of one year, by two telephone assessments at 3 months and 6 months of hospital discharge. A final visit will be made 12 months after hospital discharge by face-to-face interview. Participation will end at the time of the debriefing interview, one year after inclusion.
Modeling the interactions between patients and EPs, and between caregivers and EPs during a course of care in addictology, will lead to a better knowledge of the EP system and the place of EPs in the trajectories of addictology care.
The effectiveness of the PE system can thus be recognized in the management of addictions, in complementarity with the caregivers. The driving factors for implementation will be identified in order to improve the dissemination of the PE system to other centers."
详细描述
In France and abroad, patient involvement is increasingly encouraged, particularly through the implementation of therapeutic education programs, but also through the promotion of experiences involving patients in their care or that of their peers1 , mainly in the field of chronic diseases and mental health. In this context and for more than 10 years, the Department of Psychiatry - Addictology of the Bichat Hospital has solicited former patients who have developed an expertise, to accompany patients in their addictological care, in addition to the care provided by health professionals.
Over time, their missions have developed considerably and it seemed necessary to integrate them more formally into the care team. It is in this context that the work of formalizing the expert patient system has been carried out, based on existing experiences in France and abroad, particularly in Quebec and Switzerland2,3 . By acting as an intermediary link between patients and caregivers, EPs play a major role in improving the attention paid to patients. They make it possible to put the patient back at the center of care and to give him or her a full place in the care process.
Addictology EPs within the APHP
The APEA and the Addictology Department of the Bichat Hospital (APHP-Nord, University of Paris) have set up a partnership in which expert patients intervene on a voluntary basis with patients throughout the care process, as full partners in care. They are integrated into the care team and, as such, participate in the organization of care and are solicited for service projects.
The clinical missions of the EPs with the patients followed in the service consist, among other things, in co-facilitating the weekly discussion groups with the health professionals, in meeting the hospitalized patients during weekly individual visits and in proposing therapeutic workshops (singing workshop, for example). They are also available before and after hospitalization to maintain the link with the patients they meet, but also to accompany them in the management of their daily life, their emotions and their desire to consume6. Regular exchanges between EPs and caregivers during information meetings allow for better consideration of patients' objectives, desires and plans.
研究设计
- 研究类型
- Observational
- 观察模型
- Case Only
- 时间视角
- Prospective
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- 未提供
排除标准
- 未提供
结局指标
主要结局
Description of patients' care pathways through their interactions with EPs and the overall addiction care system, over a one-year period
时间窗: Continuously for 1 year
Description of patients' care pathways through their interactions with EPs and the overall addiction care system, over a one-year period
次要结局
- Characterize and describe patient profiles according to these pathways(Inclusion, 3 months, 6 months and 12 months)
- Describe the contribution of EPs in terms of care coordination (interaction between patients - EPs - health professionals)(During 1 year)