Managing Young People With Attention Deficit Hyperactivity Disorder in Primary Care (MAP) Study: Mapping Current Practice and Co-producing Guidance to Improve Healthcare in an Underserved Population
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 816
- 试验地点
- 1
- 主要终点
- WP1: Reports of the prescribing of adult ADHD medication, by primary care practices in England
研究概览
简要总结
Background:
Attention deficit hyperactivity disorder (ADHD) is the most common childhood neurodevelopmental disorder. It affects around 5% of children and adolescents, and up to 40% continue to experience symptoms into adulthood. Primary care practitioners (e.g., general practitioners (GPs), nurses, link workers, clinical pharmacists) play an important role in the healthcare of young people (YP) with ADHD, particularly due to long waiting times in adult mental health services, and patchy provision of specialist services. However, many practitioners feel unsure about how to support YP at this vulnerable stage in their lives. Practitioners report concerns about prescribing ADHD medication and a desire for more guidance. Currently, little is known about how YP with ADHD are supported in primary care, the strengths and weakness of existing care pathways, and how care can be improved.
Aims:
To provide an evidence-base by mapping current services, and co-produce guidance to improve and better co-ordinate primary care for YP aged 16-25 with ADHD.
Methods:
Three interlinked studies. A mapping study including a national survey of stakeholders to map patient pathways, prescribing practice, shared-care arrangements, and practitioner roles. A qualitative study including semi-structured interviews with YP and practitioners, to gain insight into experiences of 'what works' and 'what is needed'. Workshops to co-develop a map of patient pathways, key messages, and clinical guidance.
Patient Involvement:
This research has been developed in response to identified gaps in services, and requests from people with ADHD. The team includes young people with ADHD whose input will help ensure the research is sensitive and relevant, and an academic GP to ensure identified solutions are deliverable within primary care settings.
Impact:
The expected impact of this research is improvement of the quality and experience of care for YP with ADHD. Also, to improve experiences of primary care providers facing difficulties managing ADHD.
详细描述
This research aims to map current services and co-create evidence-based guidance to improve and better co-ordinate primary care for young people aged 16-25 years with ADHD.
OBJECTIVES
The objectives of this research are to:
-
Develop a national map and overview of current primary care pathways and prescribing practice in the management of young people with ADHD
-
Explore:
-
Primary care providers and related organisations' needs for information resources and prescribing support in their roles managing care for young people with ADHD
-
The expectations and needs of young people aged 16-25 regarding primary care ADHD support, information, and management
-
Co-produce evidence informed guidance to better co-ordinate primary care for young people with ADHD, based on discussions around findings from objectives 1, 2a and 2b
研究设计
- 研究类型
- Observational
- 观察模型
- Ecologic Or Community
- 时间视角
- Cross Sectional
入排标准
- 年龄范围
- 16 Years 至 —（Child, Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •Self-identifies as
- •Being at least one of the following:
- •A person aged 16 or over with lived experience of ADHD, or parent/carer of a person with ADHD
- •Health professional (person working in any role that provides healthcare services, include NHS, voluntary and private services, clinical, managerial, leadership and administrative roles)
- •Commissioner/provider of National Health Service (NHS) healthcare services (e.g., member of clinical commissioning group, primary care network (PCN), integrated care system (ICS), or another NHS organisation)
- •Currently resident, working, or studying in England
排除标准
- •Does not identify as a person aged 16 or over with lived experience of ADHD, a health professional, or a commissioner/provider of NHS health services
- •Not currently resident, working, or studying in England
- •WP2 QUALITATIVE STUDY
- •Inclusion Criteria:
- •One of the following:
- •Young person aged 16-25 with lived experience of ADHD, or a parent/carer of a young person with ADHD
- •Health professional (person that provides healthcare services with a focus on primary care, including clinical, managerial, leadership and administrative roles)
- •Commissioner/provider of healthcare services (e.g., member of clinical commissioning group, PCN, ICS, NHS, or another organisation)
- •Currently resident or working in England
- •Currently resident or working close to one of the qualitative study sites identified following WP1, where 'close to' means located within the same geographic locality (to be decided based on findings from WP1)
- •Exclusion Criteria:
- •Not a young person aged 16-25 with lived experience of ADHD (or a parent/carer), a health professional, or commissioner/provider of health services
- •Not currently resident or working in England
- •Not currently resident, working, or studying close to one of the qualitative study sites identified following WP1, where 'close to' means located within the same geographic locality (to be decided based on findings from WP1)
- •WP3 Co-PRODUCTION
- •Inclusion Criteria:
- •One of the following:
- •Young person aged 16-25 with lived experience of ADHD, or a parent/carer of a young person with ADHD
- •Health professional (person that provides healthcare services, including clinical, managerial, leadership and administrative roles)
- •Commissioner/provider of NHS healthcare services (e.g., member of clinical commissioning group, PCN, ICS, local authority, or another NHS organisation)
- •A member of the MAP study research team
- •Currently resident, working, or studying in England
- •Willing and able to work collaboratively and engage in consultations to co-produce evidence-based guidance for improving the co-ordination of primary care for young people with ADHD
- •Exclusion Criteria:
- •Not a young person aged 16-25 with lived experience of ADHD (or a parent/carer), a health professional, commissioner/provider of NHS health services, or a member of the MAP study research team
- •Not currently resident, working, or studying in England
- •Not willing and able to work collaboratively and engage in consultations to co-produce evidence-based guidance for improving the co-ordination of primary care for young people with ADHD
结局指标
主要结局
WP1: Reports of the prescribing of adult ADHD medication, by primary care practices in England
时间窗: At time of completing survey
WP1 (national survey) will report on prescribing of ADHD medication by primary care practices in England. Outcome data will be communicated as a summary total of 'yes' / 'no' survey responses, and analysed by the geographic location of practices, as well as the type of respondent reporting this practice (e.g., person with ADHD, clinician, or commissioner)
次要结局
- WP1: Reports of mental health support being in place for patients with adult ADHD medication, by local primary care practices (in England)(At time of completing survey)
- WP1: Reports of shared care agreements being in place for prescribing of adult ADHD medication, by local primary care practices (in England)(At time of completing survey)
- WP2: Qualitative summary of the perspectives of people involved in delivering and in need of care, on the management of ADHD in primary care medication, by local primary care practices (in England)(At time of interview)