Survey to Determine Incarcerated Persons Views on Surrogate Decision-Making
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 入组人数
- 75,000
- 试验地点
- 1
- 主要终点
- Views on surrogates
研究概览
简要总结
Background:
About 180,000 of the people in US prisons are over 55 years old. Aging people often cannot make medical decisions on their own. People who cannot make their own decisions must rely on a "surrogate." A surrogate is someone who helps the person's doctor make decisions for them. Researchers want to conduct a survey to ask people in prison who they would like to be their surrogates. But first, they need to find out if their survey questions are clear and easy to understand.
Objective:
To get imprisoned people's feedback on survey questions about surrogate decision making.
Eligibility:
People currently imprisoned in a US facility with access to Edovo. They must be able to read and write in English.
Design:
Participants will answer 26 survey questions. The questions will be on the Edovo Learn software platform. After each question, they will be asked: "Was this question clear? If not, please explain in the box below what you found unclear. Also, if you have any suggestions for how we might make the question clearer, please include them."
Participants will be asked to imagine themselves in a situation where they cannot make their own medical decisions. They may skip questions or stop the survey if they want. No information that identifies them will be collected.
The survey will take about 15 minutes.
详细描述
Study Description:
Currently, different states have different practices for surrogate decision-making for incarcerated persons who are not able to make their own decisions. These differences raise the challenge of determining which approach or approaches are the best. To address this issue, our research team has developed a questionnaire for incarcerated persons. This questionnaire will be integrated into a software application known as Edovo (https://www.edovo.org/), which is tailored for use in correctional facilities. This research aims to gather incarcerated persons" preferences related to surrogate decision-making. The study team hopes to identify best practices that could inform practices and policies across states, ultimately enhancing the support provided to this vulnerable population.
Objectives:
Primary Objective:
Explore incarcerated persons' views regarding surrogate decision-making if they become unable to make their own medical decisions.
研究设计
- 研究类型
- Observational
- 观察模型
- Other
- 时间视角
- Cross Sectional
入排标准
- 年龄范围
- 18 Years 至 120 Years（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •INCLUSION CRITERIA:
- •In order to be eligible to participate in this study, an individual must meet all of the following criteria:
- •Currently incarcerated in a United States facility with Edovo educational tablets
- •Ability to understand the consent form and survey
- •Willingness to give informed consent
排除标准
- •An individual who meets any of the following criteria will be excluded from participation in this study:
- •1. Inability to read or write in English
研究组 & 干预措施
Incarcerated adults
Adults who are incarcerated in the United States
干预措施: Survey (Other)
结局指标
主要结局
Views on surrogates
时间窗: end of study
Incarcerated persons preferences for surrogate decision-makers if they become unable to make their own medical decisions.
Views on PPP
时间窗: end of study
Proportion of incarcerated persons who endorse the use of a PPP for medical decision-making for incarcerated persons who become unable to make their own medical decisions.
次要结局
未报告次要终点