NCT02465476已完成不适用
Rationalization of the Treatment Pathway of Patient Suffering From Rare Skin Disease With Telemedicine
适应症
干预措施
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 212
- 试验地点
- 2
- 主要终点
- Number of hospital visits
研究概览
简要总结
The investigators want to demonstrate that a new organization with telemedicine could rationalize the treatment pathway of patient suffering from rare skin disease. A diagnosis and a personalised treatment pathway could be performed before the consultation in the hospital.
研究设计
- 研究类型
- Interventional
- 分配方式
- Randomized
- 干预模型
- Parallel
- 主要目的
- Supportive Care
- 盲法
- None
入排标准
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •New patients suffering from a rare skin disease whatever pathology or age, which needs a take-over by this centre
- •Or patients already take-over by the centre but lost to follow-up for more than one year
- •Patients (and/or parents) who give their consents
- •Patients (and/or parents) able to fill in questionnaires
排除标准
- •Pregnant or breast-feeding women.
- •Patients subject to a judicial safeguard order
- •Patients who need an emergency take-over
- •Patients followed by a doctor who does not have a computerized system or refuse to send data via the secured messaging
研究组 & 干预措施
normal care
No Intervention
patient who will have normal treatment pathway
telemedicine
Experimental
patient who will have telemedicine
干预措施: telemedicine (Procedure)
结局指标
主要结局
Number of hospital visits
时间窗: 6 months
Interest of a procedure of telemedicine on the organization of the treatment pathway of patients affected by rare skin diseases in terms of change of the number of visit in hospital.
次要结局
- Improvement of the treatment pathway and its organization(6 months)
- Change of the cost related to the patient care (direct and indirect).(6 months)
- management of time by the medical personal.(6 months)
- Satisfaction of the patient(6 months)
研究者
研究点 (2)
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