People With Speech Disabilities Contributing Speech Samples for Improved Accessibility of Speech-Enabled Devices
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 485
- 试验地点
- 2
- 主要终点
- Recorded Speech
研究概览
简要总结
The goal of the Speech Accessibility Project at the University of Illinois Beckman Institute (https://speechaccessibilityproject.beckman.illinois.edu) is to collect, annotate, and curate a shared database of speech samples from people with atypical speech, and share this data set with researchers at other organizations. This two-year project plans to collect 1,200,000 speech samples from 2,000 people, each of whom will provide 600 samples. In Year 1, the initial focus will be people with Parkinson's. In Year 2, four more etiologies of interest will be recruited: Amyotrophic Lateral Sclerosis (ALS), Cerebral Palsy (CP), Down Syndrome (DS), and Stroke. UIUC will build an open-source software infrastructure to collect annotated speech samples and share these data in an appropriately secure fashion with researchers from our partner technology companies (and eventually, other organizations as well) so that they can use these data to improve their automatic speech recognition algorithms. This project promotes diversity, equity, and inclusion by helping technology companies to fully support all types of speech, and it is also more efficient and less burdensome for these specialized patient populations to have one centralized "collector" of speech samples.
详细描述
The goal of our project is to collect 1,200,000 speech samples from 2,000 people with dysarthria, where we expect to collect data from 400 people each from five different patient populations. Each person would provide 600 speech samples.
(600 samples/person x 400 persons/etiology x 5 etiologies = 1,200,000 samples)
Our schedule of research procedures is:
- February or March-August 2023: data collection of speech samples from 400 people with Parkinson's.
- August 2023-August 2025: data collection of speech samples from 1,600 people with ALS, CP, DS, and Stroke.
Data collection of speech samples in Year 1 will be a collaboration of the University of Illinois and of mentors from Lee Silverman Voice Therapy (LSVT) Global. Potential participants will be screened both with a questionnaire and by providing a short set of "quality control" speech samples. If the participant does not pass screening, they will be thanked for their interest. Otherwise, the participant is eligible for the study and can do the informed consent process and then engage in contributing speech samples.
研究设计
- 研究类型
- Observational
- 观察模型
- Ecologic Or Community
- 时间视角
- Cross Sectional
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Adult (age >= 18 years)
- •Self-reported diagnosis of Parkinson's Disease, ALS, CP, DS, or Stroke
- •Reads and speaks English in the form of complete sentences
- •Has a valid email address
- •Ability to access web browser to participate in study
排除标准
- •Is a resident of the State of Washington, Texas, or Illinois (because these states have privacy laws that would not allow us to collect 'voice prints')
- •If quality control screening of initial speech samples "fails" because of poor data quality (e.g., poor quality recording environment, or person's speech is "too typical" and not sufficiently interesting to continue collecting)
结局指标
主要结局
Recorded Speech
时间窗: 3-7 hours, self-paced
Each participant records 600 sentences: 480 read sentences, and 120 spontaneous sentences recorded in response to 30 prompts.
次要结局
未报告次要终点