Worldwide Sarcoidosis Research Study
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 发起方
- Alicia Gerke
- 入组人数
- 2,200
- 试验地点
- 1
- 主要终点
- Define and characterize sarcoidosis phenotypes and methods of care
研究概览
简要总结
The aim of this study is to collect information about the clinical course and characteristics of sarcoidosis patients around the world through web-based surveys. Recruitment is directed at and driven by patients in the sarcoidosis community. This will allow the the investigators to study sarcoidosis patients across all demographic, geographic, and socioeconomic boundaries, not just patients seen at large research centers. The investigators believe this study can give investigators a broader and less biased view of sarcoidosis. The investigators would also like to collect genetic samples on this population to assess genetic variance in different phenotypes.
The information for the study would be provided through a web based survey system that can be accessed by patients or physicians of patients from any computer with Internet access. This system would collect clinical information in sufficient detail so that the phenotype of individual patients can be evaluated. Upon agreeing to participate in further research studies through the website, subjects will also have the opportunity to provide a DNA sample.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 年龄范围
- 18 Years 至 —(Adult, Older Adult)
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Diagnosis of Sarcoidosis
- •Access to a computer with Internet
排除标准
- 未提供
结局指标
主要结局
Define and characterize sarcoidosis phenotypes and methods of care
时间窗: Anticipated by 2017
To give a broader and less biased view of sarcoidosis
次要结局
未报告次要终点
研究者
Alicia Gerke
Associate Professor; Division of Pulmonary, Critial Care and Occupational Medicine
University of Iowa
