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临床试验/NL-OMON49798
NL-OMON49798已完成不适用

Haemophilia in the Netherlands 6 - HiN-6

eids Universitair Medisch Centrum0 个研究点目标入组 1,250 人开始时间: 待定最近更新:

试验速览

阶段
不适用
状态
已完成
入组人数
1,250

研究概览

简要总结

暂无简介。

研究设计

研究类型
Observational

入排标准

年龄范围
2 至 64(—)

入选标准

  • - Men with severe, moderate, mild congenital haemophilia A or B that are
  • registered at one of the haemophilia treatment centres in the Netherlands.
  • - Written informed consent before data collection and sampling blood/urine.
  • - Male patients with congenital haemophilia A or B who underwent liver
  • transplantation in the past (irrespective of their endogenous clotting factor
  • - All currently deceased male haemophilia A or B patients that participated in
  • the HiN-5 questionnaire in 2001

排除标准

  • - Female carriers of haemophilia A or B
  • - Symptomatic carriers of haemophilia A or B
  • - Patients with acquired haemophilia.
  • - Patients with reduced FVIII levels due to Von Willebrand disease.
  • - Inability to obtain informed consent from patients older than 12 years of age.
  • - No informed consent before data collection and sampling blood/urine.

研究者

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