NCT00724646已完成不适用
Direct Care Staff and Parents'/Legal Guardians' Perspectives on End-of-Life Care in a Long-Term Care Facility for Medically Fragile and Intellectually Disabled Pediatric and Young Adult Residents
适应症
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 125
- 试验地点
- 1
- 主要终点
- Participants' responses to survey questions.
研究概览
简要总结
Hattie Larlham is a specialized long-term care facility for pediatric and young adult residents who are medically fragile and intellectually disabled, whose daily care is provided by direct care staff, Habilitation Assistants (HA), in conjunction with nurses and other direct care providers. The purpose of this study is to assess the perspectives of HA and parents/legal guardians on end-of-life care in a long-term care facility for pediatric and young adult residents who are medically fragile and intellectually disabled.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Retrospective
入排标准
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •HA at Hattie Larlham between January 1, 2006 to present
- •HA provided care to > 1 resident whose death occurred between January 1, 2006 through the end of the study period
- •HA provided ongoing care to the resident for at least 5 days in the last 30 days at Hattie Larlham before the resident's death
- •Parent/legal guardian of a Hattie Larlham resident whose death occurred between January 1, 2006 through the end of the study
排除标准
- •HA employed < 30 days at Hattie Larlham or cared for resident <5 days in last 30 days prior to the resident's death
- •HA or parent/legal guardian who has not experienced a Hattie Larlham resident's death since December 31, 2005
结局指标
主要结局
Participants' responses to survey questions.
时间窗: Start of Study
次要结局
- Participants' responses to focus group discussions.(End of study)
研究者
研究点 (1)
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