NCT03758911已完成不适用
Perspectives on the Adolescent, Young Adult, and Adult Experience as Donors for Their Parent Undergoing Haploidentical Bone Marrow Transplants
适应症
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 16
- 主要终点
- Themes influencing donors' decision-making as assessed by words used during interview responses
研究概览
简要总结
The purpose of this pilot study is to explore the role of family function on decision-making for bone marrow donors who donated for their parent, and to assess the unique supportive care needs of these participants. Semi-structured interviews were conducted with participants to identify overarching themes of the donation experience.
研究设计
- 研究类型
- Observational
- 观察模型
- Case Only
- 时间视角
- Prospective
入排标准
- 年龄范围
- 13 Years 至 —（Child, Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •Donated bone marrow or peripheral blood stem cells for their parent in the past 1-6 months
- •Willing to participate in mandatory audio recorded telephone interview
- •Able to participate in interview without assistance
- •Must be English speaking
- •Transplant recipient (parent) must be living
排除标准
- •Unable to provide oral consent for participation (for minors- unable to obtain parental consent and/or oral assent from child for participation)
结局指标
主要结局
Themes influencing donors' decision-making as assessed by words used during interview responses
时间窗: Day 1
Words/terms are extracted from interviewer responses and associated to key themes that influence participant's decision-making process. A codebook is used to reference these words/terms
次要结局
未报告次要终点
研究者
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