NCT04950231已完成不适用
Investigation on the Knowledge Needs of ALS Patients and Their Caregivers at Home
适应症
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 20
- 试验地点
- 1
- 主要终点
- Scale
研究概览
简要总结
The research target
- To investigate the home nursing knowledge needs of ALS patients;
- Investigate the needs of ALS caregivers for home nursing knowledge;
- To compare the differences between patients and caregivers in the knowledge needs of patients' refusal to care, so as to provide patients and caregivers with targeted care, meet the needs of patients, improve the quality of life of patients, and extend the survival period.
详细描述
The research target
- To investigate the home nursing knowledge needs of ALS patients;
- Investigate the needs of ALS caregivers for home nursing knowledge;
- To compare the differences between patients and caregivers in the knowledge needs of patients' refusal to care, so as to provide patients and caregivers with targeted care, meet the needs of patients, improve the quality of life of patients, and extend the survival period.
Assessment indicators
- Scale: Self-designed questionnaire "Questionnaire on the Degree of Home Nursing Knowledge Needs of ALS Patients or Their Families";
- Amyotrophic lateral sclerosis function rating scale (ALS FRS)
研究设计
- 研究类型
- Observational
- 观察模型
- Case Only
- 时间视角
- Prospective
入排标准
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •confirmed and suspected patients of ALS diagnostic criteria revised by E1 Escorial in 1998;Conscious and stable vital signs;Signing the informed consent;
排除标准
- •patients with severe medical diseases, such as severe cardiovascular and cerebrovascular diseases, liver and kidney failure, etc.The existing resources cannot complete the questionnaire to fill in the exclusion of patients, but the caregivers can fill in the questionnaire;
结局指标
主要结局
Scale
时间窗: 1 year after recruitment
Scale: Self-designed questionnaire Questionnaire on the Degree of Home Nursing Knowledge Needs of ALS Patients or Their Family Members;
次要结局
- (ALS FRS)(1 year after recruitment)
研究者
研究点 (1)
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