ISRCTN13535901暂停未知
ending an ear: iPeer2Peer plus Teens Taking Charge Online Self-Management to empower children with arthritis
适应症
试验速览
- 阶段
- 未知
- 状态
- 暂停
- 入组人数
- 60
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Interventional
入排标准
- 性别
- All
入选标准
- •Adolescent (mentee):
- •1. Aged 12-18 years
- •2. Diagnosed with and actively being treated for JIA (any subtype)
- •3. Parent and adolescent are both able to speak and read English.
- •4. Access to a computer/ smartphone and internet connection
- •1. Aged 18-26 years
- •2. Diagnosis of JIA (any subtype)
- •3. Nominated by a member of their health care team as a good mentor
- •4. Self-reported adherence to current treatment plan (80-100% compliance)
- •5. Self-reported successful transition to an adult rheumatologist
- •6. Self-reported self-efficacy in their ability to manage their JIA related symptoms
- •7. Willingness to commit to training (20 hours) and mentoring participants (once paired with mentee 10 to 30 minute calls over a period of 15 weeks)
- •8. Access to a computer/ smartphone and internet connection
- •Young person advisory panel:
- •1. Aged 12-18 years
- •2. Diagnosis of JIA (any subtype)
- •3. Nominated by a member of their health care team as a good mentor
- •4. Access to a computer and internet connection
- •5. Self-reported self-efficacy in their ability to manage their JIA related symptoms
- •6. Willingness to commit to training (20 hours) and mentoring participants (once paired with mentee 10 to 30 minute calls over a a period of 12 weeks)
排除标准
- •Adolescent (mentee), peer mentor and young person advisory panel member:
- •1. Major cognitive impairments,
- •2. Co-morbid medical or psychiatric illnesses based on medical assessment which may impact on ability to understand and use web-based programmes
- •Parents/caregivers will not be eligible to participate in the study alone (without an adolescent also participating)
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.Rheumatoid arthritis (RA) is a chronic systemic inflammatory autoimmune disease that targets the synovial tissues [O’Dell, 2004]. The synovial inflammation may cause irreversible cartilage destruction and erosion of boneMedDRA version: 18.0Level: LLTClassification code 10042952Term: Systemic rheumatoid arthritisSystem Organ Class: 100000004859EUCTR2011-006021-23-BEAstellas Pharma Global Development650
