NL-OMON50966招募中不适用
Follow You intervention study: Effectiveness of a multidisciplinary training program on daily physical functioning in children and young adolescents with a hereditary connective tissue disorder: a feasibility study - FY intervention study on daily (physical) functioning
适应症
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 入组人数
- 20
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Interventional
入排标准
- 年龄范围
- 2 至 17（—）
入选标准
- •Children and adolescents (6-18 years old) who are diagnosed with either Marfan
- •syndrome, Ehlers-Danlos Syndromes or Loeys-Dietz syndrome, who are treated in
- •the Amsterdam University Medical Center, location AMC or Reade Amsterdam. The
- •origin of the children/adolescents and their parents can be of every country
- •and/or ethnicity .
排除标准
- •Children/ adolescents who, next to the Marfan syndrome, Ehlers-Danlos Syndromes
- •or Loeys-Dietz syndrome, have another prominent chronic disease affecting their
- •physical functioning, or children who are seriously cognitive impaired or
- •completely wheelchair dependent.
- •In addition, for children with MFS, LD and EDS-vascular type permission from
- •the cardiologist is required for participation in this study
研究者
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