Social Media Use in Advanced Cancer: Patient Considerations of Social Media Account Management After Death
试验速览
- 阶段
- 不适用
- 状态
- 进行中（未招募）
- 入组人数
- 117
- 试验地点
- 1
- 主要终点
- Proportion of patients with advanced cancer in the supportive cancer clinic who have had discussions regarding their social media account
研究概览
简要总结
This study examines how supportive care clinic patients have made decisions or had discussions about how their caregivers or family should manage their social media account(s) after death. Collecting information on the use of social media and preferences will allow for a better understanding of patient's needs in the dying process and may identify populations in need of education, identify a possible source of anxiety and stress, and allow for an informed discussion of digital legacy.
详细描述
PRIMARY OBJECTIVE:
I. Identify the proportion of patients with advanced cancer in the supportive cancer clinic who have had discussions regarding their social media account (e.g. Facebook, Twitter, Instagram) management after death.
SECONDARY OBJECTIVE:
I. Identify the proportion of social media participation among advanced cancer patients seen in the supportive care clinic.
II. Evaluate the baseline awareness advanced cancer patients seen in the supportive care clinic have regarding how their Facebook account may be managed after death.
研究设计
- 研究类型
- Observational
- 观察模型
- Case Only
- 时间视角
- Prospective
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Patients with at least 1 follow-up visit to the outpatient Supportive Care Clinic at MDACC
- •Patients with any type of advanced cancer
- •Patients aged 18 years or older
- •Patients who have used social media
- •Patients able to read and write in English
排除标准
- •Delirium as diagnosed by treating Supportive Care Center (SCC) physician or Memorial Delirium Assessment Scale (MDAS) score >= 7
研究组 & 干预措施
Observational (questionnaires)
Patients complete questionnaires over 30 minutes about level of anxiety and social media use and management.
干预措施: Questionnaire Administration (Other)
结局指标
主要结局
Proportion of patients with advanced cancer in the supportive cancer clinic who have had discussions regarding their social media account
时间窗: through study completion, an average of 1 year
Will be measured by Question 10 in the survey: "I have had conversations with my family or friends regarding how I would like any of my social media accounts managed after death", which contains five options: Strongly Disagree, Disagree, Neither Agree or Disagree, Agree, or Strongly Agree. The results will be dichotomized into either "Strongly Agree/Agree" or "Neither Agree or Disagree/ Disagree/Strongly Disagree". A two-sided 95% confidence interval will extend a maximum of 0.063 from the proportion of main interest.
次要结局
未报告次要终点