Perceived Impact of Art Therapy in Patients With Cystic Fibrosis (Adolescents, Adults and Transplanted Not Transplanted) and in Professional Interdisciplinary Teams Taking Care of Them.
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 23
- 试验地点
- 2
- 主要终点
- Patient responses to the effects of art therapy and music therapy
研究概览
简要总结
Cystic fibrosis is so far a disease whose treatment remains essentially symptomatic care teams perceive the boundaries of a support mainly focused on drug treatments. The patient had no other choice but to learn to live with their disease, the goal is to make every effort so that tames the disease while maintaining high self-esteem that gives meaning to his life, allowing, among other things, a good grip of treatment.
Through this research we hope to encourage the integration of art therapy in the course of care of cystic fibrosis patients, from children to adults before and after transplantation, in connection with the patient education and counseling
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 年龄范围
- 13 Years 至 —（Child, Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •Cystic fibrosis aged adolescents 13 to 18 years, as part of their monitoring at cystic fibrosis center of Nantes
- •Adults over 18 years nontransplanted in their follow at cystic fibrosis center/transplantation center of Foch
- •More than 18 adult transplant as part of their monitoring at cystic fibrosis center/transplantation center Foch
- •Professional interdisciplinary teams taking care of the cystic fibrosis children center of Nantes, cystic fibrosis center/transplantation center of Foch
- •Agreeing to participate in research
- •Non Inclusion Criteria:
- •Patient refusal of adolescent parents to participate in the study
- •Professional refusal of teams to participate in the study
排除标准
- 未提供
结局指标
主要结局
Patient responses to the effects of art therapy and music therapy
时间窗: 1 day
The depth interviews with patients will achieve a thematic and structural analysis of the speech. This will capture the effects of art therapy and music therapy on patients, their point of view.
次要结局
未报告次要终点