跳至主要内容
临床试验/DRKS00029270
DRKS00029270招募中不适用

Growing into adulthood with Duchenne Muscular Dystrophy – comparing patient experiences and systems to optimize care - GrowDMD

European Joint Programme for Rare Diseases0 个研究点目标入组 650 人开始时间: 2022年7月26日最近更新:

试验速览

阶段
不适用
状态
招募中
发起方
入组人数
650

研究概览

简要总结

暂无简介。

研究设计

研究类型
Observational

入排标准

年龄范围
15 Years 至 25 Years(—)
性别
Male

入选标准

  • •Patients with the diagnosis DMD (age 15-25 years old), their relatives and the health care professionals involved in the transition process, living in Canada, Germany, and Italy.

排除标准

  • •Patients with other diagnosis, siblings; and other professionals (e.g. teacher)

研究者

发起方
European Joint Programme for Rare Diseases

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