Mood Patient Powered Research Network (MoodNetwork)
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 5,716
- 试验地点
- 1
- 主要终点
- Patient Reported Outcomes Working Group Items Questionnaire
研究概览
简要总结
The MoodNetwork, a patient-powered research network (PPRN), is one of 18 PPRNs participating in Patient-Centered Outcomes Research Institute's (PCORI) PCORnet network. Its objective is to improve the nation's capacity to conduct comparative effectiveness research that reflects questions of greatest importance to patients and other stakeholders. A robust data infrastructure will be built that, in phase one, allows participants to contribute data, including those from participant questionnaires, visualize their own health information in intuitive and helpful ways, and share their aggregated de-identified health information within and outside of the Network.
研究设计
- 研究类型
- Observational
- 观察模型
- Other
- 时间视角
- Other
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •English speaking
- •Valid email address
- •Self-identify as having a mood disorder
排除标准
- •Under 18 years of age
结局指标
主要结局
Patient Reported Outcomes Working Group Items Questionnaire
时间窗: average of 3 years
Composite International Diagnostic Interview Mania Questionnaire
时间窗: average of 3 years
Mini International Neuropsychiatric Interview Depression
时间窗: average of 3 years
Quick Inventory of Depressive Symptoms Self Report
时间窗: average of 3 years
Altman Self Rated Mania Scale
时间窗: average of 3 years
WHO-five well-being index (WHO-5)
时间窗: average of 3 years
Depression and Bipolar Support Alliance Wellness Tracker Questionnaire
时间窗: average of 3 years
Experience of Care and Health Outcomes Questionnaire
时间窗: average of 3 years
次要结局
未报告次要终点
研究者
Andrew A. Nierenberg, MD
Director, Bipolar Clinic and Research Program
Massachusetts General Hospital