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临床试验/NCT04182347
NCT04182347已完成不适用

Engagement in Healthy Communities for People With Intellectual and Developmental Disabilities

University of Wisconsin, Madison2 个研究点 分布在 1 个国家目标入组 57 人开始时间: 2020年1月1日最近更新:
适应症
干预措施

试验速览

阶段
不适用
状态
已完成
入组人数
57
试验地点
2
主要终点
Health Research Infographic Development

研究概览

简要总结

The objectives of this project are to to build sustainable regional communities of Intellectual or Developmental Disabilities (IDD) stakeholders to provide ongoing input to research priorities, methodological processes, and relevant person-centered health outcomes; leverage existing Special Olympic infrastructure to nationally disseminate the toolkit in order to increase participation and engagement in research and improve health outcomes; conduct comparative effectiveness trials that incorporate people with IDD focusing on their research priorities.

详细描述

This project will develop a skilled community of stakeholders through collaboration with Special Olympics to create capacity building working groups. Groups will collaborate to develop stakeholder training modules focused on leadership, research fundamentals, and health. Collaboratively developed trainings will be piloted to support revising of the Toolkit for the engagement of people with IDD in research. A range of stakeholders will be essential members of the team to design and provide critical feedback on the effectiveness of the Toolkit, research priorities, and ecologically valid methodologies. Finally, research priorities will be refined, and the research engagement Toolkit will be nationally disseminated to Special Olympics and relevant community organizations. The toolkit will include necessary training for people with IDD, as well as paid and unpaid caregivers to be engaged partners in research.

研究设计

研究类型
Interventional
分配方式
Na
干预模型
Single Group
主要目的
Health Services Research
盲法
None

入排标准

年龄范围
18 Years 至 —(Adult, Older Adult)
性别
All
接受健康志愿者

入选标准

  • Individuals with Intellectual or Developmental Disabilities (IDD)
  • Caregiver or family member of the individual with IDD
  • Patients/consumer
  • Clinician
  • Complete informed consent or assent

排除标准

  • 未提供

研究组 & 干预措施

People with IDD and caregivers

Other

干预措施: Health Research ToolKit Development (Other)

结局指标

主要结局

Health Research Infographic Development

时间窗: Up to one year

The development of health research infographics incorporating stakeholders as part of the development team that will bridge knowledge dissemination between researchers and people with IDD.

READI Curriculum Development

时间窗: Up to one year

The development of an online health research curriculum incorporating stakeholders as part of the development team.

次要结局

未报告次要终点

研究者

申办方类型
Other
责任方
Sponsor

研究点 (2)

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