COPD Patient-Powered Research Network
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 入组人数
- 75,000
- 试验地点
- 1
- 主要终点
- COPD Assessment Test (CAT)
研究概览
简要总结
The COPD Patient-Powered Research Network (COPD PPRN) is a patient research registry with the goal of enrolling 75,000 or more COPD patients and those at risk who are willing to share their heath information over several years and participate in research. The COPD PPRN has built an online platform to allow volunteers to enroll electronically, complete surveys, be contacted about studies they qualify for and become connected to COPD resources. The goal of the registry is to speed research to find better treatments for COPD and ultimately a cure.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Other
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •18 years or older that says yes to one of the following:
- •COPD diagnosis
- •Current or former smoker
- •Family history of respiratory disease
- •Symptomatic of respiratory disease
排除标准
- •Non-English speaking
结局指标
主要结局
COPD Assessment Test (CAT)
时间窗: 15 years
Patient Reported Outcome Measurement Information System-29 (PROMIS-29)
时间窗: 15 years
Modified Medical Research Council (MMRC) Dyspnea Scale
时间窗: 15 years
Charlson Comorbidity Index (CCI)
时间窗: 15 years
次要结局
未报告次要终点