NCT07142005招募中不适用
Cultural Adaptation of an Educational Tool in Medullary Thyroid Cancer
适应症
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 入组人数
- 40
- 试验地点
- 3
- 主要终点
- Questionnaires/Survey Measures
研究概览
简要总结
To find good information about medullary thyroid cancer that is easy to understand and reliable, so researchers aim to design some new educational materials to help.
详细描述
Primary Objectives
- To co-develop a culturally-adapted educational tool for the Latino/Latina MTC population using the previously developed MTCEducate.org as a framework. (Phase 1)
- To test, refine, and produce a culturally adapted educational prototype and is intended to assess participants' understanding after reviewing the decision aid as part of the iterative testing and refinement process (Phase 2)
Secondary Objectives
- To assess the tool's acceptability post-production among a broader population of Latino(a) MTC participants and caregivers using the Ottawa Acceptability Scale (Phase 3)
- To disseminate the educational tool to a broader population of Latino(a)s
- To summarize the clinico-demographics of educational tool users
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Provision of signed and dated informed consent form
- •Males and females; Age: ≥18 years old
- •Identified ethnicity as "Hispanic" or "Latino/Latina"
- •Ability to read, write, and speak Spanish
- •Those who are pregnant are eligible to participate
- •Have or will face this decision, including: a. Participant/survivor - who has medullary thyroid carcinoma, as determined by a clinician or documented in Multi-Institutional Medullary Thyroid Cancer Collaborative Registry; b. Caregiver/family member - of Participant/survivor who has medullary thyroid carcinoma, as nominated by the Participant/survivor
排除标准
- •Those < age 18
- •Ethnic identity as non-Hispanic or non-Latino/a individual
- •Individuals with cognitive or psychological impairment (e.g., depression, anxiety, severe mental illness as documented in the registry
结局指标
主要结局
Questionnaires/Survey Measures
时间窗: Through study completion; an average of 1 year
次要结局
未报告次要终点
研究者
研究点 (3)
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