Lethal Fetal Abnormality : the Experience of Pregnancy by Parents Who Have Chosen to Carry to Term With Palliative Care.
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 9
- 试验地点
- 3
- 主要终点
- Description of the pregnancy by parents who have chosen to carry to term despite a lethal fetal diagnosis
研究概览
简要总结
In France, according to current legislation, termination of pregnancy could be performed without any upper gestational age limit, if there is a strong probability that the fetus will be affected by a particularly severe and incurable disease. When there is a lethal fetal diagnosis most of parents wish to terminate their pregnancy. However, and despite some medical resistance a few of them do wish to continue pregnancy. In these situations, palliative care seems to be a good way to prepare to welcome the child and surround him until death.
The aim of the study is to describe parents' experience for a better understanding and a better care.
研究设计
- 研究类型
- Observational
- 观察模型
- Other
- 时间视角
- Prospective
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •The woman must be between the ages of 18 and 50 and the adult,
- •Participants must have received the information and not have objected to participating in the study,
- •the lethal / adverse short-term prognosis of the fetal pathology must have been confirmed by a committee of experts (CPDPN),
- •The choice to continue the pregnancy should have been clearly expressed,
- •The birth of the child should not be older than 24 months.
- •The child's death must be more than 6 months old (or not have occurred)
排除标准
- •Non-mastery of the French language,
- •Measure of legal protection of one of the members of the couple (guardianship, trusteeship, ...),
- •Severe psychiatric or neurological disorders inducing significant cognitive impairment.
结局指标
主要结局
Description of the pregnancy by parents who have chosen to carry to term despite a lethal fetal diagnosis
时间窗: About 1 hour and 30 minutes
The purpose of this study is to describe the experience of pregnancy by parents who have chosen to carry to term despite a lethal fetal diagnosis. Therefore, semi-structured interviews will be conducted to explore the links between context, feeling, involvement, decision and actions during pregnancy, whether within the couple or in its environment.
次要结局
未报告次要终点