CTRI/2021/08/036053尚未招募未知
A Study of Psychological Impact in Caregivers of Persons with Childhood Onset Gaucher Disease
Seth GS Medical College and KEM Hospital0 个研究点目标入组 0 人开始时间: 待定最近更新:
试验速览
- 阶段
- 未知
- 状态
- 尚未招募
- 发起方
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Observational
入排标准
入选标准
- •Consenting parents of patients
- •1. With a confirmed diagnosis of Gaucher disease (enzyme activity ± molecular study) in childhood,
- •2. On treatment for Gaucher disease (Enzyme replacement therapy or Substrate Reduction Therapy) for at least one year or treatment naïve Gaucher disease.
排除标准
- •1. Parents with a chronic disease or those caring for another family member with a chronic disease
- •2. Parents with a background of psychiatric illness or addictions (e.g. alcoholism)
研究者
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