Project AWARE 2.0 to Improve Awareness, Willingness and Ability for Research and Enrollment in Clinical Research
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 131
- 试验地点
- 1
- 主要终点
- Provide the HD research community with the insight.
研究概览
简要总结
The Project AWARE 2.0 Survey is intended to gain knowledge about the feelings, attitudes, and beliefs of HD family members, care partners and others affected by HD towards the way drug trials and observational studies are communicated and conducted.
详细描述
The Project AWARE 2.0 Survey will be offered to HD families via HSG's online platform called myHDstory®. The survey will obtain input and knowledge about their feelings, attitudes, and beliefs concerning clinical research and the process by which HD studies are communicated and conducted. Project AWARE 2.0 is intended to provide the HD research community with the insight and tools to help (a) improve prospective research participants' awareness, willingness, and ability to participate in clinical research for HD; and (b) design clinical studies and trials in the future.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Cross Sectional
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Participants must either have HD or be at risk for having HD
- •Participants must be 18 years of age or older
- •Participants must live in the United States
- •Inclusion of participants will not be based on race, gender, or ethnicity.
排除标准
- 未提供
结局指标
主要结局
Provide the HD research community with the insight.
时间窗: December 2024
Provide the HD research community with insight to design clinical studies and trials in the future.
Examine awareness
时间窗: December 2024
To examine prospective research participants' awareness, willingness, and ability to participate in clinical research for HD.
次要结局
未报告次要终点