Development of a Culturally Tailored Resilience-Building Intervention to Facilitate Advance Care Planning Discussions Between Chinese American Patients and Their Family Caregivers
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 125
- 试验地点
- 1
- 主要终点
- Readiness, Support and Resources for ACP Discussions
研究概览
简要总结
The goal of this observational study is to learn about how Chinese Americans engage in advance care planning (ACP) discussions with their family caregivers.
The main questions it aims to answer are:
- How do religious leaders discuss advance care planning and death-related topics with Chinese Americans who are diagnosed with cancer or heart disease in Chicago?
- Are Chinese Americans living in Chicago ready to participate in ACP discussions with their family?
- What kind of support and resources are required to engage in end-of-life care discussions among Chinese Americans/immigrants living in Chicago?
- What do Chinese Americans with cancer, high blood pressure, or heart disease and their family members think about an ACP pamphlet made for Chinese Americans?
Participants will share their experience either through interviews or a survey.
详细描述
The overall objective of this pilot study is to develop a culturally tailored resilience-building intervention for Chinese Americans with cancer or heart disease in Chicago. A qualitative analysis of semi-structured interviews will be conducted to identify how religious leaders addressed death-related topics with Chinese Americans with cancer, heart disease, or hypertension in Chicago. In addition, a mixed-method study using surveys and focus groups to understand the readiness, support, and resources of Chinese Americans living in Chicago to participate in ACP discussions with their family. Finally, a usability study will ask Chinese Americans with cancer, high blood pressure, or heart disease, and their family members, to share feedback on an ACP pamphlet designed for Chinese Americans.
研究设计
- 研究类型
- Observational
- 观察模型
- Case Only
- 时间视角
- Cross Sectional
入排标准
- 年龄范围
- 18 Years 至 90 Years（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •Inclusion criteria for religious leaders:
- •Age ≥ 18 years of age;
- •Having served as a chaplain, pastor, or monk at a health care setting or religious organization in Chicago;
- •Being able to read and respond to questions in English or Mandarin;
- •Having experience in having end-of-life discussions with Chinese Americans in Chicago.
排除标准
- •Unwilling to provide consent.
- •Inclusion criteria for Chinese Americans living in Chicago:
- •Age ≥ 18 years of age;
- •Identifying themselves as first- or second-generation Chinese Americans;
- •Being able to read and respond to questions in Mandarin or English.
- •Exclusion criteria: Unwilling to provide consent.
- •Inclusion criteria for Chinese Americans with experience in end-of-life care discussions:
- •Age ≥ 18 years of age;
- •Identifying themselves as first- or second-generation Chinese Americans;
- •Having experience discussing end-of-life care decisions with others;
- •Being able to read, write, and respond to questions in either English or Mandarin.
- •Exclusion criteria: Unwilling to provide consent.
- •Inclusion criteria for Chinese Americans with cancer, hypertension, or heart disease:
- •Age ≥ 18 years of age;
- •Self-identify themselves as first- or second-generation Chinese Americans/immigrants;
- •Having a diagnosis of chronic diseases, such as cancer, hypertension, or heart disease;
- •Being able to read and respond to questions in Mandarin;
- •Being of the non-Hispanic Asian race/ethnicity.
- •Exclusion criteria:
- •Having cognitive impairment per a Short Portable Mental Status Questionnaire with more than 3 errors, or
- •Being born in the US.
- •Inclusion criteria for their family members:
- •Age ≥ 18 years of age;
- •Being able to read and respond to questions in Mandarin;
- •Having a family member who is self-identified as a first or second-generation Chinese American/immigrant and has been diagnosed with chronic diseases, such as cancer, hypertension, or heart disease.
- •Exclusion criteria: Unwilling to provide consent.
研究组 & 干预措施
Chinese Americans for end-of-life care discussions
Chinese Americans with experience in end-of-life care discussions
干预措施: Chinese Americans with end-of-life care discussions (Other)
Chinese Americans with chronic disease and their family members
Chinese Americans diagnosed with cancer, hypertension, or heart disease and their family members
干预措施: Chinese Americans with chronic diseases (Other)
Religious Leaders
Religious leaders providing spiritual care to Chinese Americans
干预措施: Religious leaders (Other)
Chinese Americans living in Chicago
Chinese Americans living in Chicago
干预措施: Chinese Americans (Other)
结局指标
主要结局
Readiness, Support and Resources for ACP Discussions
时间窗: Immediately at the end of the study
The Advance Care Planning Engagement Survey was used to evaluate the readiness for advance care planning discussions among Chinese Americans living in Chicago.
次要结局
- Support Needed for ACP Discussions(Immediately at the end of the study)
- Strategies Used for ACP and Death-related Discussions(Immediately at the end of the study)
- Acceptability of an ACP pamphlet(Immediately at the end of the study)