Evaluation of Web-based Transition Education to Enhance Transition Readiness and Health Service Utilization in Adolescents/Young Adults With Congenital Heart Disease
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 180
- 试验地点
- 2
- 主要终点
- Change in transition readiness score, as measured by transition readiness survey
研究概览
简要总结
The study looks to learn more about the helpfulness of web-based transition education and its effect on transition readiness and health service utilization in the adolescent and young adult congenital heart disease population.
研究设计
- 研究类型
- Interventional
- 分配方式
- Randomized
- 干预模型
- Parallel
- 主要目的
- Other
- 盲法
- None
入排标准
- 年龄范围
- 13 Years 至 25 Years（Child, Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Diagnosed with congenital heart disease
- •Ages 13-25
- •Routine outpatient cardiology follow-up visit
排除标准
- •New patients to cardiology clinic
- •Patients being evaluated for an acute medical problem
- •Patients who do not speak English
- •Severe neurocognitive impairment that precludes ability to complete the questionnaire
结局指标
主要结局
Change in transition readiness score, as measured by transition readiness survey
时间窗: baseline, 12 months
The transition readiness survey is used to measure a participant's self-reported knowledge about their health and readiness to take charge of their healthcare. Each item is scored from 1 to 5, where 1 means "No, I do not know how" and 5 means "Yes, I always do this when I need to." The overall score is determined by calculating the sum of all questions on a 100 point scale. A higher score indicates greater readiness for transition.
次要结局
未报告次要终点
研究者
Karen Uzark
Clinical Professor of Cardiac Surgery and Pediatric Cardiology
University of Michigan